What causes fibromyalgia? An online survey of patient perspectives

被引：22

作者：

Furness, Penny J. ^{[1
]}

Vogt, Katharina ^{[2
]}

Ashe, Simon ^{[1
]}

Taylor, Sophie ^{[1
]}

Haywood-Small, Sarah ^{[1
]}

Lawson, Kim ^{[1
]}

机构：

[1] Sheffield Hallam Univ, Sheffield, S Yorkshire, England

[2] Univ Sheffield, Sheffield, S Yorkshire, England

来源：

HEALTH PSYCHOLOGY OPEN | 2018年 / 5卷 / 02期

关键词：

chronic pain; etiology; fibromyalgia; rehabilitation; stress; survey; trauma;

D O I：

10.1177/2055102918802683

中图分类号：

B849 [应用心理学];

学科分类号：

040203 ;

摘要：

Fibromyalgia is a severe chronic pain condition that affects every aspect of life. Causes of the condition remain unclear, and quantitative research cannot account for patients' personal illness narratives and perceptions. This online survey gathered qualitative accounts of the perceived causes of their condition from 596 people with fibromyalgia, which were analyzed thematically. Themes were "Bodily assault, ill-health, and change"; "Emotional trauma and distress"; "Stress and vulnerability"; and "Explaining and authenticating fibromyalgia." Discussion focuses on the complexity of causation, the importance of understanding and having symptoms validated, and the potential for benefiting from patient expertise in building better practitioner-client relationships.

引用

页数：11

共 80 条

[1] Mechanisms of Disease: genetics of fibromyalgia
Ablin, Jacob N.
Cohen, Hagit
Buskila, Dan
[J]. NATURE CLINICAL PRACTICE RHEUMATOLOGY, 2006, 2 (12): : 671 - 678
[2] Psychosocial Factors and Central Sensitivity Syndromes
Adams, Leah M.
Turk, Dennis C.
[J]. CURRENT RHEUMATOLOGY REVIEWS, 2015, 11 (02) : 96 - 108
[3] Existential and clinical uncertainty in the medical encounter: An idiographic account of an illness trajectory defined by inflammatory bowel disease and avascular necrosis
Adamson, C
[J]. SOCIOLOGY OF HEALTH & ILLNESS, 1997, 19 (02) : 133 - 159
[4] The impact of life events in female patients with fibromyalgia and in female healthy controls
Anderberg, UM
Marteinsdottir, I
Theorell, T
von Knorring, L
[J]. EUROPEAN PSYCHIATRY, 2000, 15 (05) : 295 - 301
[5] The relationship between sleep quality and fibromyalgia symptoms
Andrade, Alexandro
Vilarino, Guilherme Torres
Sieczkowska, Sofia Mendes
Coimbra, Danilo Reis
Bevilacqua, Guilherme Guimaraes
Steffens, Ricardo de Azevedo Klumb
[J]. JOURNAL OF HEALTH PSYCHOLOGY, 2020, 25 (09) : 1176 - 1186
[6] Ashe SC, 2017, HEALTH PSYCHOL OPEN, V4, DOI 10.1177/2055102917724336
[7] Ayats M., 2006, PSIQUIATRIA BIOL, V13, P193
[8] An investigation into the empowerment effects of using online support groups and how this affects health professional/patient communication
Bartlett, Yvonne Kiera
Coulson, Neil S.
[J]. PATIENT EDUCATION AND COUNSELING, 2011, 83 (01) : 113 - 119
[9] HOW STORIES MAKE SENSE OF PERSONAL EXPERIENCES - MOTIVES THAT SHAPE AUTOBIOGRAPHICAL NARRATIVES
BAUMEISTER, RF
NEWMAN, LS
[J]. PERSONALITY AND SOCIAL PSYCHOLOGY BULLETIN, 1994, 20 (06) : 676 - 690
[10] An internet survey of 2,596 people with fibromyalgia
Bennett, Robert M.
Jones, Jessie
Turk, Dennis C.
Russell, I. Jon
Matallana, Lynne
[J]. BMC MUSCULOSKELETAL DISORDERS, 2007, 8 (1)

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