Addressing the unique healthcare needs of women: Opportunity for change exists at the intersection of precision health and learning health systems

被引:8
作者
Satveit, Sonya [1 ]
机构
[1] Open Source Hlth, 400,365 Bay St, Toronto, ON M5H 2V1, Canada
关键词
Polycystic Ovary Syndrome; Precision Health; Women's Health;
D O I
10.1002/lrh2.10033
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Introduction: Women have unique healthcare needs that are not well addressed by our current healthcare system and with healthcare transformation underway the opportunity exists to avoid weaving these age-old problems into the fabric of the new healthcare design. myAva is an example of a learning health system integrated into a cloud-based precision health platform. The goal of myAva is to integrate the tools of precision health and principals of a learning health system to improve care for women, starting with polycystic ovary syndrome (PCOS). Methods: Putting patients at the center in designing a new style of healthcare has been an important concept underlying the development of myAva since inception. Understanding the needs of patients and providers is key to the development of myAva. Surveys were collected from members of the PCOS patient community and patient and medical advisory boards were recruited. For the pilot group comprehensive omic data, biometric and self-reported data were collected and integrated into a personalized health dashboard enabling providers to formulate personalized treatment plans. The ongoing collection of data will create continuous improvement of healthcare. Results: Precision health for chronic issues faced is in its infancy and although myriad challenges exist the potential to improve health outcomes is great. myAva's providers, patients. and advisors are encouraged by the early outcomes of the program with improved health outcomes and an increased sense of empowerment reported. It is clear that designing and implementing this type of care requires collaboration, the involvement of all stakeholders, with patients at the center.
引用
收藏
页数:8
相关论文
共 38 条
[1]   The Experience of Women Affected by Polycystic Ovary Syndrome: A Qualitative Study From Iran [J].
Amiri, Fatemeh Nasiri ;
Tehrani, Fahimeh Ramezani ;
Simbar, Masoumeh ;
Montazeri, Ali ;
Thamtan, Reza Ali Mohammadpour .
INTERNATIONAL JOURNAL OF ENDOCRINOLOGY AND METABOLISM, 2014, 12 (02)
[2]   Health care-related economic burden of the polycystic ovary syndrome during the reproductive life span [J].
Azziz, R ;
Marin, C ;
Hoq, L ;
Badamgarav, E ;
Song, P .
JOURNAL OF CLINICAL ENDOCRINOLOGY & METABOLISM, 2005, 90 (08) :4650-4658
[3]   Stein and Leventhal: 80 years on [J].
Azziz, Ricardo ;
Adashi, Eli Y. .
AMERICAN JOURNAL OF OBSTETRICS AND GYNECOLOGY, 2016, 214 (02) :247.e1-247.e11
[4]   Quality of life and psychological well being in polycystic ovary syndrome [J].
Barnard, L. ;
Ferriday, D. ;
Guenther, N. ;
Strauss, B. ;
Balen, A. H. ;
Dye, L. .
HUMAN REPRODUCTION, 2007, 22 (08) :2279-2286
[5]  
Brady C, 2009, DRUG HEALTHC PATIENT, V1, P9
[6]   Data-Driven Healthcare [J].
Chang, Hyejung .
HEALTHCARE INFORMATICS RESEARCH, 2015, 21 (01) :61-62
[7]   Is having polycystic ovary syndrome a predictor of poor psychological function including anxiety and depression? [J].
Deeks, A. A. ;
Gibson-Helm, M. E. ;
Paul, E. ;
Teede, H. J. .
HUMAN REPRODUCTION, 2011, 26 (06) :1399-1407
[8]   Colorectal cancer screening among obese versus non-obese patients in primary care practices [J].
Ferrante, Jeanne M. ;
Ohman-Strickland, Pamela ;
Hudson, Shawna V. ;
Hahn, Karissa A. ;
Scott, John G. ;
Crabtree, Benjamin F. .
CANCER DETECTION AND PREVENTION, 2006, 30 (05) :459-465
[9]  
Friedman CP, 2017, LEARN HEALTH SYST, V1, DOI 10.1002/lrh2.10020
[10]   Systematic review: The evidence that publishing patient care performance data improves quality of care [J].
Fung, Constance H. ;
Lim, Yee-Wei ;
Mattke, Soeren ;
Damberg, Cheryl ;
Shekelle, Paul G. .
ANNALS OF INTERNAL MEDICINE, 2008, 148 (02) :111-123