Beyond patient-centered care: person-centered care for Parkinson's disease

被引:19
作者
Buetow, Stephen A. [1 ]
Martinez-Martin, Pablo [2 ,3 ]
Hirsch, Mark A. [4 ]
Okun, Michael S. [5 ]
机构
[1] Univ Auckland, Dept Gen Practice & Primary Hlth Care, Auckland, New Zealand
[2] Natl Ctr Epidemiol, Madrid, Spain
[3] Ctr Networked Biomed Res Neurodegenerat Dis CIBER, Madrid, Spain
[4] Carolinas Rehabil, Carolinas Med Ctr, Dept Phys Med & Rehabil, Charlotte, NC USA
[5] Univ Florida, Ctr Movement Disorders & Neurorestorat, Dept Neurol, Gainesville, FL USA
关键词
D O I
10.1038/npjparkd.2016.19
中图分类号
Q189 [神经科学];
学科分类号
071006 ;
摘要
Interest has grown in centering Parkinson's disease (PD) care provision on the welfare of the patient with PD. By putting the welfare of patients first, this patient-centric focus tends to subordinate the welfare of others including clinicians and carers. A possible solution is person-centered care. Rather than remove the spotlight from the patients, it widens that light to illuminate moral interests of all healthcare participants as persons whose welfare is interdependent. It assumes that unwellness among clinicians, for example, can impact the quality of the PD care they provide, such that caring for clinicians may also optimize the welfare of persons with PD. For PD, we suggest how the two models differ and why these differences are important to understand and act on to optimize benefit for participating stakeholders.
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页数:4
相关论文
共 31 条
[1]   The Past, Present, and Future of Telemedicine for Parkinson's Disease [J].
Achey, Meredith ;
Aldred, Jason L. ;
Aljehani, Noha ;
Bloem, Bastiaan R. ;
Biglan, Kevin M. ;
Chan, Piu ;
Cubo, Esther ;
Dorsey, E. Ray ;
Goetz, Christopher G. ;
Guttman, Mark ;
Hassan, Anhar ;
Khandhar, Suketu M. ;
Mari, Zoltan ;
Spindler, Meredith ;
Tanner, Caroline M. ;
van den Haak, Pieter ;
Walker, Richard ;
Wilkinson, Jayne R. .
MOVEMENT DISORDERS, 2014, 29 (07) :871-883
[2]   Defining "Patient-Centered Medicine" [J].
Bardes, Charles L. .
NEW ENGLAND JOURNAL OF MEDICINE, 2012, 366 (09) :782-783
[3]   Relationship-centered care - A constructive reframing [J].
Beach, MC ;
Inui, T .
JOURNAL OF GENERAL INTERNAL MEDICINE, 2006, 21 (Suppl 1) :S3-S8
[4]   What 'Patient-Centered' Should Mean: Confessions Of An Extremist [J].
Berwick, Donald M. .
HEALTH AFFAIRS, 2009, 28 (04) :W555-W565
[5]   Using patient-reported outcomes and PROMIS in research and clinical applications: experiences from the PCORI pilot projects [J].
Bingham, Clifton O., III ;
Bartlett, Susan J. ;
Merkel, Peter A. ;
Mielenz, Thelma J. ;
Pilkonis, Paul A. ;
Edmundson, Lauren ;
Moore, Emily ;
Sabharwal, Rajeev K. .
QUALITY OF LIFE RESEARCH, 2016, 25 (08) :2109-2116
[6]  
Broom B, 2007, MEANING FULL DIS PER
[7]  
Buetow S., 2016, PERSON CENTRED HLTH
[8]  
Charon R., 2006, NARRATIVE MED HONORI
[9]  
Dwamena F., 2012, COCHRANE DATABASE SY, V12
[10]   The Values and Value of Patient-Centered Care [J].
Epstein, Ronald M. ;
Street, Richard L., Jr. .
ANNALS OF FAMILY MEDICINE, 2011, 9 (02) :100-103