Research using electronic health records: Balancing confidentiality and public good

被引：8

作者：

Wallis, Katharine A. ^{[1
]}

Eggleton, Kyle S. ^{[1
]}

Dovey, Susan M. ^{[2
,3
]}

Leitch, Sharon ^{[2
]}

Cunningham, Wayne K. ^{[3
]}

Williamson, Martyn, I ^{[2
]}

机构：

[1] Univ Auckland, Dept Gen Practice & Primary Hlth Care, 261 Morrin Rd, Auckland 1072, New Zealand

[2] Univ Otago, Dunedin Sch Med, Dunedin, New Zealand

[3] Med Univ Bahrain, Royal Coll Surg Ireland, Busaiteen, Bahrain

来源：

JOURNAL OF PRIMARY HEALTH CARE | 2018年 / 10卷 / 04期

关键词：

D O I：

10.1071/HC18040

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

General practitioners are increasingly approached to participate in research and share de-identified patient information. Research using electronic health records has considerable potential for improving the quality and safety of patient care. Obtaining individual patient consent for the use of the information is usually not feasible. In this article we explore the ethical issues in using personal health information in research without patient consent including the threat to confidentially and the doctor-patient relationship, and we discuss how the risks can be minimised and managed drawing on our experience as general practitioners and researchers.

引用

页码：288 / 291

页数：4

共 15 条

[1] The social licence for research: why care.data ran into trouble
Carter, Pam
Laurie, Graeme T.
Dixon-Woods, Mary
[J]. JOURNAL OF MEDICAL ETHICS, 2015, 41 (05) : 404 - 409
[2] Dovey Susan M, 2017, JMIR Res Protoc, V6, pe10, DOI 10.2196/resprot.6696
[3] "Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study
Hill, Elizabeth M.
Turner, Emma L.
Martin, Richard M.
Donovan, Jenny L.
[J]. BMC MEDICAL RESEARCH METHODOLOGY, 2013, 13
[4] Who Owns the Data? Open Data for Healthcare
Kostkova, Patty
Brewer, Helen
de Lusignan, Simon
Fottrell, Edward
Goldacre, Ben
Hart, Graham
Koczan, Phil
Knight, Peter
Marsolier, Corinne
McKendry, Rachel A.
Ross, Emma
Sasse, Angela
Sullivan, Ralph
Chaytor, Sarah
Stevenson, Olivia
Velho, Raquel
Tooke, John
[J]. FRONTIERS IN PUBLIC HEALTH, 2016, 4
[5] Characteristics of a stratified random sample of New Zealand general practices
Leitch, Sharon
Dovey, Susan M.
Samaranayaka, Ari
Reith, David M.
Wallis, Katharine A.
Eggleton, Kyle S.
McMenamin, Andrew W.
Cunningham, Wayne K.
Williamson, Martyn I.
Lillis, Steven
Tilyard, Murray W.
[J]. JOURNAL OF PRIMARY HEALTH CARE, 2018, 10 (02) : 114 - 124
[6] Real-world data in the United Kingdom: opportunities and challenges
McDonald, Laura
Lambrelli, Dimitra
Wasiak, Radek
Ramagopalan, Sreeram V.
[J]. BMC MEDICINE, 2016, 14
[7] Clinical Trial Participants' Views of the Risks and Benefits of Data Sharing
Mello, Michelle M.
Lieou, Van
Goodman, Steven N.
[J]. NEW ENGLAND JOURNAL OF MEDICINE, 2018, 378 (23) : 2202 - 2211
[8] National Data Guardian, 2016, DF CALD REV DAT SEC
[9] Putting patients in control of data from electronic health records
New, John P.
Leather, David
Bakerly, Nawar Diar
McCrae, John
Gibson, J. Martin
[J]. BMJ-BRITISH MEDICAL JOURNAL, 2018, 360 : j5554
[10] NHS Digital, 2018, GEN DAT PROT REG GDP

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