Reflexivity and Dialogue: Methodological and Socio-Ethical Dilemmas in Research with HIV-Affected Children in East Africa

被引:30
作者
Skovdal, Morten [1 ]
Abebe, Tatek [2 ]
机构
[1] Univ Bergen, Dept Hlth Promot & Dev, Bergen, Norway
[2] Norwegian Univ Sci & Technol, Norwegian Ctr Child Res, Trondheim, Norway
关键词
D O I
10.1080/21550085.2012.672691
中图分类号
X [环境科学、安全科学];
学科分类号
08 ; 0830 ;
摘要
This paper presents an integrated discussion of methods and ethics by drawing on participatory research with children in Ethiopia and Kenya. It examines the complex social, ethical, practical and methodological dilemmas of research with HIV-affected children, and explores how we confronted some of these dilemmas before, during and after fieldwork. The paper interrogates the role and limitations of 'global' ethical standards in childhood research, and the ways in which the researchers' gender, ethnicity/race, material power, knowledge and insideroutsider position all intersect to affect: (a) the level of children's involvement in the research process; (b) the generation of knowledge about the field; and (c) the negotiation of ethics in collaborative ways. We argue that doing ethical research with HIV-affected children should not be based solely on dominant and de-contextualised understandings of ethics, knowledge and social relations, but should be negotiated reflexively and through dialogue with participants, including the children, their guardians and 'local' community members-all with the aim of doing good and avoiding harm in the research process.
引用
收藏
页码:77 / 96
页数:20
相关论文
共 67 条
[2]   Livelihoods, care and the familial relations of orphans in eastern Africa [J].
Abebe, Tatek ;
Skovdal, Morten .
AIDS CARE-PSYCHOLOGICAL AND SOCIO-MEDICAL ASPECTS OF AIDS/HIV, 2010, 22 (05) :570-576
[3]  
Ahn Mark J, 2003, J Int Assoc Physicians AIDS Care (Chic), V2, P81
[4]  
Alderson P., 2007, ETHICAL RES CHILDREN, P27
[5]  
Alderson P., 2008, RES CHILDREN PERSPEC
[6]  
American Public Health Association, 2002, PRINC ETH PRACT PUBL
[7]  
[Anonymous], 1995, METHODS DEV WORK RES
[8]  
ANSELL N, 2001, ETHICS PLACE ENV, V4, P101, DOI DOI 10.1080/13668790123027
[9]   Joining the Conspiracy? Negotiating Ethics and Emotions in Researching (around) AIDS in Southern Africa [J].
Ansell, Nicola ;
Van Blerk, Lorraine .
ETHICS POLICY & ENVIRONMENT, 2005, 8 (01) :61-82
[10]  
Bakhtin M. M, 1981, DIALOGIC IMAGINATION, P84