The European Cancer Patient's Bill of Rights, update and implementation 2016

被引：29

作者：

Lawler, Mark ^{[1
,2
]}

Banks, Ian ^{[2
,3
,4
]}

Law, Kate ^{[2
]}

Albreht, Tit ^{[5
]}

Armand, Jean-Pierre ^{[6
]}

Barbacid, Mariano ^{[7
]}

Barzach, Michele ^{[8
]}

Bergh, Jonas ^{[9
]}

Cameron, David ^{[10
]}

Conte, Pierfranco ^{[11
]}

de Braud, Filippo ^{[12
]}

de Gramont, Aimery ^{[13
]}

de Lorenzo, Francesco ^{[14
,15
]}

Diehl, Volker ^{[16
]}

Diler, Sarper ^{[17
]}

Erdem, Sema ^{[18
]}

Geissler, Jan ^{[19
,20
]}

Gore-Booth, Jola ^{[21
]}

Henning, Geoffrey ^{[21
]}

Hojgaard, Liselotte ^{[22
,23
]}

Horgan, Denis ^{[24
]}

Jassem, Jacek ^{[25
]}

Johnson, Peter ^{[26
,27
]}

Kaasa, Stein ^{[28
]}

Kapitein, Peter ^{[29
]}

Karjalainen, Sakari ^{[30
,31
]}

Kelly, Joan ^{[31
]}

Kienesberger, Anita ^{[32
,33
]}

La Vecchia, Carlo ^{[34
]}

Lacombe, Denis ^{[35
]}

Lindahl, Tomas ^{[36
]}

Loewenberg, Bob ^{[37
]}

Luzzatto, Lucio ^{[38
,39
]}

Malby, Rebecca ^{[40
]}

Mastris, Ken ^{[41
]}

Meunier, Francoise ^{[35
]}

Murphy, Martin ^{[42
]}

Naredi, Peter ^{[43
,44
]}

Nurse, Paul ^{[36
]}

Oliver, Kathy ^{[45
]}

Pearce, Jonathan ^{[46
]}

Pelouchov, Jana ^{[15
]}

Piccart, Martine ^{[47
]}

Pinedo, Bob ^{[48
]}

Spurrier-Bernard, Gilly ^{[49
]}

Sullivan, Richard ^{[50
]}

Tabernero, Josep ^{[51
,52
]}

Van de Velde, Cornelis ^{[53
]}

Van Herk, Bert ^{[44
,54
]}

Vedsted, Peter ^{[55
,56
]}

机构：

[1] Queens Univ Belfast, Belfast, Antrim, North Ireland

[2] European Canc Concord, Leeds, W Yorkshire, England

[3] European Mens Hlth Forum, Brussels, Belgium

[4] Univ Leeds, Leeds, W Yorkshire, England

[5] Inst Varovanje Zdravja Republ Slovenija, Ljubljana, Slovenia

[6] Gustave Roussy, Villejuif, France

[7] CNIO, Mol Oncol Programme, Expt Oncol, Madrid, Spain

[8] IHU Strasbourg Board Trustees, Strasbourg, France

[9] Karolinska Inst, Dept Oncol Pathol, Stockholm, Sweden

[10] Univ Edinburgh, Edinburgh Canc Ctr, Edinburgh, Midlothian, Scotland

[11] Ist Oncol Veneto, Padua, Italy

[12] Natl Canc Inst, Div Med Oncol, Milan, Italy

[13] Inst Hosp Franco Britann, Dept Oncol, Levallois Perret, France

[14] Italian Federat Volunteer based Canc Organizat, Rome, Italy

[15] European Canc Patient Coalit, Brussels, Belgium

[16] Univ Cologne, Internal Med, Cologne, Germany

[17] Myeloma Patients Europe, Istanbul, Turkey

[18] Europa Donna, Milan, Italy

[19] Leukemia Patient Advocates Fdn, Bern, Switzerland

[20] European Patients Acad Therapeut Innovat, Riemerling, Germany

[21] EuropaColon, London, England

[22] Danmarks Grundforskningsfond, Copenhagen, Denmark

[23] Univ Copenhagen, Fac Hlth & Med Sci, Copenhagen, Denmark

[24] European Alliance Personalised Med, Brussels, Belgium

[25] Med Univ Gdansk, Dept Oncol & Radiotherapy, Gdansk, Poland

[26] Univ Southampton, Dept Med Oncol, Southampton, Hants, England

[27] Canc Res UK, London, England

[28] Norges Tekn Naturvitenskapelige Univ, Inst Canc Res & Mol Med, Trondheim, Norway

[29] Inspire2Live, Amsterdam, Netherlands

[30] Syopajarjestot, Helsinki, Finland

[31] Assoc European Canc Leagues, Brussels, Belgium

[32] Irish Canc Soc, Dublin, Ireland

[33] Austrian Childhood Canc Org, Vienna, Austria

[34] Univ Milan, Dept Clin Sci & Community Hlth, Milan, Italy

[35] European Org Res Treatment Canc, Brussels, Belgium

[36] Francis Crick Inst, London, England

[37] Erasmus Univ, Med Ctr, Dept Hematol, Rotterdam, Netherlands

[38] Muhimbili Univ Hlth & Allied Sci, Dar Es Salaam, Tanzania

[39] Univ Florence, Florence, Italy

[40] London South Bank Univ, Sch Hlth & Social Care, London, England

[41] Europa Uomo, Antwerp, Belgium

[42] European Canc Concord, Soc Translat Oncol, Durham, NC USA

[43] Gothenburg Univ, Gothenburg, Sweden

[44] European Canc Org, Brussels, Belgium

[45] Int Brain Tumour Alliance, Tadworth, England

[46] Lymphoma Assoc, Aylesbury, Bucks, England

[47] Inst Jules Bordet, Brussels, Belgium

[48] VuMC Canc Ctr, Amsterdam, Netherlands

[49] Melanoma Patient Network Europe, Paris, France

[50] Kings Hlth Partners Integrated Canc Ctr, Inst Canc Policy, London, England

来源：

ESMO OPEN | 2016年 / 1卷 / 06期

关键词：

Bill of Rights; Cancer Concord; Cancer outcomes;

D O I：

10.1136/esmoopen-2016-000127

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

In this implementation phase of the European Cancer Patient's Bill of Rights (BoR), we confirm the following three patient-centred principles that underpin this initiative: 1. The right of every European citizen to receive the most accurate information and to be proactively involved in his/her care. 2. The right of every European citizen to optimal and timely access to a diagnosis and to appropriate specialised care, underpinned by research and innovation. 3. The right of every European citizen to receive care in health systems that ensure the best possible cancer prevention, the earliest possible diagnosis of their cancer, improved outcomes, patient rehabilitation, best quality of life and affordable health care. The key aspects of working towards implementing the BoR are: Agree our high-level goal. The vision of 70% longterm survival for patients with cancer in 2035, promoting cancer prevention and cancer control and the associated progress in ensuring good patient experience and quality of life. Establish the major mechanisms to underpin its delivery. (1) The systematic and rigorous sharing of best practice between and across European cancer healthcare systems and (2) the active promotion of Research and Innovation focused on improving outcomes; (3) Improving access to new and established cancer care by sharing best practice in the development, approval, procurement and reimbursement of cancer diagnostic tests and treatments. Work with other organisations to bring into being a Europe based centre that will (1) systematically identify, evaluate and validate and disseminate best practice in cancer management for the different countries and regions and (2) promote Research and Innovation and its translation to maximise its impact to improve outcomes.

引用

页数：5

共 3 条

[1] The European Cancer Patient's Bill of Rights: Action Steps for Success [J].

Friese, Christopher R. ;

Ayanian, John Z. .

ONCOLOGIST, 2014, 19 (03) :225-227

[2] A Catalyst for Change: The European Cancer Patient's Bill of Rights [J].

Lawler, Mark ;

Le Chevalier, Thierry ;

Murphy, Bmartin J., Jr. ;

Banks, Ian ;

Conte, Pierfranco ;

De Lorenzo, Francesco ;

Meunier, Francoise ;

Pinedo, H. M. ;

Selby, Peter ;

Armand, Jean-Pierre ;

Barbacid, Mariano ;

Barzach, Michele ;

Bergh, Jonas ;

Bode, Gerlind ;

Cameron, David A. ;

de Braud, Filippo ;

de Gramont, Aimery ;

Diehl, Volker ;

Diler, Sarper ;

Erdem, Sema ;

Fitzpatrick, John M. ;

Geissler, Jan ;

Hollywood, Donal ;

Hojgaard, Liselotte ;

Horgan, Denis ;

Jassem, Jacek ;

Johnson, Peter W. ;

Kapitein, Peter ;

Kelly, Joan ;

Kloezen, Sandra ;

La Vecchia, Carlo ;

Loewenberg, Bob ;

Oliver, Kathy ;

Sullivan, Richard ;

Tabernero, Josep ;

Van de Velde, Cornelis J. ;

Wilking, Nils ;

Wilson, Roger ;

Zielinski, Christoph ;

Zur Hausen, Harald ;

Johnston, Patrick G. .

ONCOLOGIST, 2014, 19 (03) :217-224

[3] A Bill of Rights for patients with cancer in Europe [J].

Lawler, Mark ;

Le Chevalier, Thierry ;

Banks, Ian ;

Conte, Pierfranco ;

De Lorenzo, Francesco ;

Meunier, Francoise ;

Pinedo, H. M. ;

Selby, Peter ;

Murphy, Martin J. ;

Johnston, Patrick G. .

LANCET ONCOLOGY, 2014, 15 (03) :258-260

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