Mentoring Program for Young Adults with Sickle Cell Disease

被引:3
作者
Berg, Christine [1 ]
King, Allison [1 ]
Edwards, Dorothy Farrar [2 ,3 ,4 ]
机构
[1] Washington Univ, Sch Med, Program Occupat Therapy, St Louis, MO USA
[2] Univ Wisconsin, Dept Kinesiol & Med, Madison, WI USA
[3] Univ Wisconsin, Wisconsin Alzheimers Dis Res Ctr Outreach Educ &, Madison, WI USA
[4] Univ Wisconsin, Collaborat Ctr Hlth Equ, Madison, WI USA
关键词
Sickle cell disease; mentoring; occupational therapy;
D O I
10.1080/07380577.2018.1443363
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Using descriptive case studies, this paper describes a short-term mentoring program using goal attainment scaling for young adults with sickle cell disease (SCD). Two participants received three and seven visits, respectively, before dropping out of the program with no significant change in goal attainment scores. Although the program supported meaningful individualized goals, repeated and cumulative effects of hospitalizations, sickle cell pain episodes, family health issues, unsafe location of residence, and transportation appeared to remain significant barriers for to achieve stated goals. While the value of an individualized, community-based mentoring experience that addresses goal attainment remains unanswered, this project documents the complex and health barriers of young adults living with SCD.
引用
收藏
页码:124 / 136
页数:13
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