I live a life of frustration ... Individual with Parkinson's disease

被引：15

作者：

Hermanns, Melinda ^{[1
]}

机构：

[1] Univ Texas Tyler, Nursing, Tyler, TX 75799 USA

来源：

JOURNAL OF CHRISTIAN NURSING | 2011年 / 28卷 / 02期

关键词：

chronic illness; ethnography; Parkinson's disease; movement disorders;

D O I：

10.1097/CNJ.0b013e31820b8d9f

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

Parkinson's disease (PD), a movement disorder related to dopamine insufficiency in the brain, affects 7 to 10 million people worldwide. Research has focused on etiology and treatment, while research on how patients deal with PD is limited. This ethnographic study explored the illness experience of 14 participants living with PD. The metaphor, "Sailing the Seas in the Eye of the Storm" depicts their experience. Content themes "Daily Negotiations in the Midst of Uncertainty" (the storm) and "Reconstruction of the Self" (the traveler's voyage) suggest aspects of holistic care for PD patients.

引用

页码：76 / 82

页数：7

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