Factors affecting recruitment and participation of bereaved parents and siblings in grief research

被引：29

作者：

Akard, Terrah Foster ^{[1
]}

Gilmer, Mary Jo ^{[1
]}

Miller, Katy ^{[1
]}

Steele, Amii Corbisiero ^{[2
]}

Hancock, Kelly ^{[3
]}

Barrera, Maru ^{[3
]}

Compas, Bruce ^{[1
]}

Davies, Betty ^{[4
]}

Dietrich, Mary S. ^{[1
]}

Fairclough, Diane L. ^{[5
]}

Hogan, Nancy S. ^{[6
]}

Vannatta, Kathryn ^{[7
,8
]}

Gerhardt, Cynthia A. ^{[7
,8
]}

机构：

[1] Vanderbilt Univ, Nashville, TN 37235 USA

[2] Levine Childrens Hosp, Charlotte, NC USA

[3] Hosp Sick Children, Toronto, ON, Canada

[4] Univ Calif San Francisco, San Francisco, CA 94143 USA

[5] Univ Colorado, Hlth Sci Ctr, Aurora, CO USA

[6] Loyola Univ, Chicago, IL 60611 USA

[7] Nationwide Childrens Hosp, Res Inst, Columbia, MO USA

[8] Ohio State Univ, Columbus, OH 43210 USA

来源：

PROGRESS IN PALLIATIVE CARE | 2014年 / 22卷 / 02期

关键词：

Recruitment; Bereavement; Grief; Bereaved parents; Bereaved sibling; Childhood cancer; Pediatric palliative care;

D O I：

10.1179/1743291X13Y.0000000071

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

This study examined participation factors in a study of families (N = 84) within 1 year of a child's cancerrelated death. Specific aims were to examine associations between: (a) recruitment variables (number of phone calls made to eligible families, number of calls answered by eligible families) and participation rates (study agreement and refusal) and (b) characteristics of deceased children (gender, age, length of illness, time since death) and participation rates. Characteristics of deceased children did not differ between participating and non-participating families. Researchers made significantly fewer calls to participating versus refusing families. Participating families most often agreed during the first successful call connection, and more calls did not mean more recruitment success. Thus, it is reasonable to limit the number of calls made to bereaved families. Despite recruitment challenges, many bereaved parents and siblings are willing and interested to participate in grief research.

引用

页码：75 / 79

页数：5

共 27 条

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