What Matters Most at the End-of-Life for Chinese Americans?

被引:36
作者
Lee, Mei Ching [1 ]
Hinderer, Katherine A. [2 ]
Alexander, Carla S.
机构
[1] Univ Maryland, Baltimore, MD 21201 USA
[2] Salisbury Univ, Salisbury, MD USA
关键词
end-of-life wishes; good death; Chinese American; culture; death and dying;
D O I
10.1177/2333721418778195
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
Background: To provide optimal end-of-life (EOL) care in the Chinese American population, we need to have a better understanding of what matters most at EOL from their perspective. Experiencing a "good death" at the EOL is the optimal goal of palliative care. Studies show that the meaning and description of good death varies across cultures in different populations. In the United States, Chinese Americans comprise the largest Asian demographic. Aim: To describe EOL wishes, which define a good death for Chinese Americans. Method: Qualitative study using focus groups. A convenience sample of 60 Chinese Americans was recruited from a community organization in Maryland. Ten focus group discussion sessions were conducted. Results: Wishes at the EOL that defined a good death for the participants in this study included being pain-free, not being a burden to family, being with family, having a trusted physician, maintaining dignity, and prayer. Conclusion: A good death is a complex concept. What matters most to patients at the EOL differs depending on their cultural background. When caring for Chinese Americans, a comprehensive EOL care plan should include cultural considerations in addition to physical, psychosocial, and spiritual needs.
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页数:7
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共 41 条
  • [1] RESEARCHING "GOOD DEATH" IN A HONG KONG PALLIATIVE CARE PROGRAM: A CLINICAL DATA-MINING STUDY
    Chan, Wallace C. H.
    Epstein, I.
    [J]. OMEGA-JOURNAL OF DEATH AND DYING, 2011, 64 (03) : 203 - 222
  • [2] Good death study of elderly patients with terminal cancer in Taiwan
    Cheng, S. Y.
    Hu, W. Y.
    Liu, W. J.
    Yao, C. A.
    Chen, C. Y.
    Chiu, T. Y.
    [J]. PALLIATIVE MEDICINE, 2008, 22 (05) : 626 - 632
  • [3] Factors Affecting the Improvement of Quality of Dying of Terminally Ill Patients with Cancer through Palliative Care: A Ten-Year Experience
    Cheng, Shao-Yi
    Dy, Sydney
    Hu, Wen-Yu
    Chen, Ching-Yu
    Chiu, Tai-Yuan
    [J]. JOURNAL OF PALLIATIVE MEDICINE, 2012, 15 (08) : 854 - 862
  • [4] Dignity and the essence of medicine: the A, B, C, and D of dignity conserving care
    Chochinov, Harvey
    [J]. BRITISH MEDICAL JOURNAL, 2007, 335 (7612): : 184 - 187
  • [5] Advanced cancer patients' reported wishes at the end of life: a randomized controlled trial
    Delgado-Guay, Marvin O.
    Rodriguez-Nunez, Alfredo
    De la Cruz, Vera
    Frisbee-Hume, Susan
    Williams, Janet
    Wu, Jimin
    Liu, Diane
    Fisch, Michael J.
    Bruera, Eduardo
    [J]. SUPPORTIVE CARE IN CANCER, 2016, 24 (10) : 4273 - 4281
  • [6] Dilley S, 2013, HUMAN DIGNITY BIOETH
  • [7] Addressing Health and Well-Being of US Chinese Older Adults Through Community-Based Participatory Research: Introduction to the PINE Study
    Dong, XinQi
    [J]. JOURNALS OF GERONTOLOGY SERIES A-BIOLOGICAL SCIENCES AND MEDICAL SCIENCES, 2014, 69 : S1 - S6
  • [8] Perspectives of Asians living in Texas on pain management in the last days of life
    Duke, Gloria
    Petersen, Sandra
    [J]. INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2015, 21 (01) : 24 - 34
  • [9] A knowledge synthesis of culturally- and spiritually-sensitive end-of-life care: findings from a scoping review
    Fang, Mei Lan
    Sixsmith, Judith
    Sinclair, Shane
    Horst, Glen
    [J]. BMC GERIATRICS, 2016, 16
  • [10] The quality of dying and death: a systematic review of measures
    Hales, Sarah
    Zimmermann, Camilla
    Rodin, Gary
    [J]. PALLIATIVE MEDICINE, 2010, 24 (02) : 127 - 144