Managing Palliative Care for Adults With Advanced Heart Failure

被引：0

作者：

Kaasalainen, Sharon ^{[1
]}

Strachan, Patricia H. ^{[2
]}

Brazil, Kevin ^{[3
,4
]}

Marshall, Denise ^{[4
]}

Willison, Kathleen ^{[2
,4
]}

Dolovich, Lisa ^{[5
,6
]}

Taniguchi, Alan ^{[4
]}

Demers, Catherine ^{[7
,8
]}

机构：

[1] McMaster Univ, Sch Nursing, Dept Family Med, Div Palliat Care, Hamilton, ON, Canada

[2] McMaster Univ, Sch Nursing, Hamilton, ON, Canada

[3] McMaster Univ, Dept Clin Epidemiol & Biostat, Hamilton, ON, Canada

[4] McMaster Univ, Dept Family Med, Div Palliat Care, Hamilton, ON, Canada

[5] McMaster Univ, Dept Family Med, Hamilton, ON, Canada

[6] St Josephs Healthcare, Ctr Evaluat Med, Hamilton, ON, Canada

[7] McMaster Univ, Hamilton, ON, Canada

[8] Hamilton Hlth Sci Heart Funct Clin, Hamilton, ON, Canada

来源：

CANADIAN JOURNAL OF NURSING RESEARCH | 2011年 / 43卷 / 03期

关键词：

access to care; cardiovascular disease; community health nursing; palliative care;

D O I：

暂无

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

The purpose of this study was to explore the care processes experienced by community-dwelling adults dying from advanced heart failure, their family caregivers, and their health-care providers. A descriptive qualitative design was used to guide data collection, analysis, and interpretation. The sample comprised 8 patients, 10 informal caregivers, 11 nurses, 3 physicians, and 3 pharmacists. Data analysis revealed that palliative care was influenced by unique contextual factors (i.e., cancer model of palliative care, limited access to resources, prognostication challenges). Patients described choosing interventions and living with fatigue, pain, shortness of breath, and functional decline. Family caregivers described surviving caregiver burden and drawing on their faith. Health professionals described their role as trying to coordinate care, building expertise, managing medications, and optimizing interprofessional collaboration. Participants strove towards 3 outcomes: effective symptom management, satisfaction with care, and a peaceful death.

引用

页码：38 / 57

页数：20

共 34 条

[11] Heyland D. K., 2006, CMAJ, V174, P1
[12] Removing the boundaries: palliative care for patients with heart failure
Horne, G
Payne, S
[J]. PALLIATIVE MEDICINE, 2004, 18 (04) : 291 - 296
[13] Jaarsma T, 2002, Eur J Cardiovasc Nurs, V1, P223
[14] Daily symptom burden in end-stage chronic organ failure: a systematic review
Janssen, D. J. A.
Spruit, M. A.
Wouters, E. F. M.
Schols, J. M. G. A.
[J]. PALLIATIVE MEDICINE, 2008, 22 (08) : 938 - 948
[15] Johansen H, 2003, CAN J CARDIOL, V19, P430
[16] Palliative care for patients with heart failure: description of a service
Johnson, MJ
Houghton, T
[J]. PALLIATIVE MEDICINE, 2006, 20 (03) : 211 - 214
[17] Life expectancy after an index hospitalization for patients with heart failure: A population-based study
Ko, Dennis T.
Alter, David A.
Austin, Peter C.
You, John J.
Lee, Douglas S.
Qiu, Feng
Stukel, Therese A.
Tu, Jack V.
[J]. AMERICAN HEART JOURNAL, 2008, 155 (02) : 324 - 331
[18] Evidence for improving palliative care at the end of life: A systematic review
Lorenz, Karl A.
Lynn, Joanne
Dy, Sydney M.
Shugarman, Lisa R.
Wilkinson, Anne
Mularski, Richard A.
Morton, Sally C.
Hughes, Ronda G.
Hilton, Lara K.
Maglione, Margaret
Rhodes, Shannon L.
Rolon, Cony
Sun, Virginia C.
Shekelle, Paul G.
[J]. ANNALS OF INTERNAL MEDICINE, 2008, 148 (02) : 147 - 159
[19] Moore Rebecca Marie, 2002, THESIS
[20] Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community
Murray, SA
Boyd, K
Kendall, M
Worth, A
Benton, TF
Clausen, H
[J]. BRITISH MEDICAL JOURNAL, 2002, 325 (7370): : 929 - 932A

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