Informal Hospice Caregiving: The Toll on Quality of Life

被引：17

作者：

Wilder, Heidi M. ^{[1
]}

Oliver, Debra Parker ^{[2
]}

Demiris, George ^{[3
]}

Washington, Karla ^{[4
]}

机构：

[1] Brown Univ, Warren Alpert Med Sch, Box G 8309, Providence, RI 02912 USA

[2] Univ Missouri, Family & Community Med, Columbia, MO USA

[3] Univ Washington, Sch Med, Sch Nursing & Med Educ & Biomed Informat, Biobehav Nursing & Hlth Syst, Seattle, WA USA

[4] Univ Louisville, Social Work, Louisville, KY USA

来源：

JOURNAL OF SOCIAL WORK IN END-OF-LIFE & PALLIATIVE CARE | 2008年 / 4卷 / 04期

关键词：

Caregiver; hospice; longitudinal; palliative care; quality of life;

D O I：

10.1080/15524250903081566

中图分类号：

C916 [社会工作、社会管理、社会规划];

学科分类号：

1204 ;

摘要：

A primary goal in hospice philosophy is to enhance quality of life for both patients and families. Informal family caregivers are essential for the provision of hospice services, but past research has demonstrated a social, emotional, financial, and physical toll associated with this role. The present study investigated self-reported caregiver quality of life in four domains upon patient admission to hospice (n = 76) and 1 month later (n = 45). Significant decreases were found for emotional, social, and total quality of life. Average social quality of life was initially the highest domain but became the lowest after 1 month. Physical quality of life was lowest initially and decreased slightly. Interpretations and implications of results are given.

引用

页码：312 / 332

页数：21

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