An Ethic of Connectedness: Book Review of The Connected Self: The Ethics and Governance of the Genetic Individual

被引:0
作者
Rahimzadeh, Vasiliki [1 ]
机构
[1] McGill Univ, Ctr Genom & Policy, Montreal, PQ, Canada
来源
BIOETHIQUEONLINE | 2014年 / 3卷
关键词
genetics; governance; research ethics; autonomy; toolbox;
D O I
暂无
中图分类号
R-052 [医学伦理学];
学科分类号
0101 ; 120402 ;
摘要
The Connected Self: The Ethics and Governance of the Genetic Individual challenges readers to engage in both the social and scientific complexities of researching the human genome, and how they influence evolving conceptions of the self. Heather Widdows proposes that the existing principles of bioethics, which govern biomedical research, insufficiently reflect the interactions of individuals to their communities and social networks, and argues that recognition of such interactions in understanding genetics and health is necessary for policies to effectively safeguard research participants from harms that may result.
引用
收藏
页数:5
相关论文
共 16 条
  • [1] FALSE HOPES AND BEST DATA - CONSENT TO RESEARCH AND THE THERAPEUTIC MISCONCEPTION
    APPELBAUM, PS
    ROTH, LH
    LIDZ, CW
    BENSON, P
    WINSLADE, W
    [J]. HASTINGS CENTER REPORT, 1987, 17 (02) : 20 - 24
  • [2] Empty ethics: the problem with informed consent
    Corrigan, O
    [J]. SOCIOLOGY OF HEALTH & ILLNESS, 2003, 25 (07) : 768 - 792
  • [3] Genetic testing for susceptibility to adult-onset cancer - The process and content of informed consent
    Geller, G
    Botkin, JR
    Green, MJ
    Press, N
    Biesecker, B
    Wilfond, B
    Grana, G
    Daly, MB
    Schneider, K
    Kahn, MJE
    [J]. JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 1997, 277 (18): : 1467 - 1474
  • [4] Gould C.C., 2014, INTERACTIVE DEMOCRAC
  • [5] Charting a course for genomic medicine from base pairs to bedside
    Green, Eric D.
    Guyer, Mark S.
    [J]. NATURE, 2011, 470 (7333) : 204 - 213
  • [6] Ethics, reflexivity, and "Ethically important moments" in research
    Guillemin, M
    Gillam, L
    [J]. QUALITATIVE INQUIRY, 2004, 10 (02) : 261 - 280
  • [7] Genomic medicine - A primer
    Guttmacher, AE
    Collins, FS
    [J]. NEW ENGLAND JOURNAL OF MEDICINE, 2002, 347 (19) : 1512 - 1520
  • [8] Held V, 2005, ETHICS CARE PERSONAL
  • [9] Implementing genomic medicine in the clinic: the future is here
    Manolio, Teri A.
    Chisholm, Rex L.
    Ozenberger, Brad
    Roden, Dan M.
    Williams, Marc S.
    Wilson, Richard
    Bick, David
    Bottinger, Erwin P.
    Brilliant, Murray H.
    Eng, Charis
    Frazer, Kelly A.
    Korf, Bruce
    Ledbetter, David H.
    Lupski, James R.
    Marsh, Clay
    Mrazek, David
    Murray, Michael F.
    O'Donnell, Peter H.
    Rader, Daniel J.
    Relling, Mary V.
    Shuldiner, Alan R.
    Valle, David
    Weinshilboum, Richard
    Green, Eric D.
    Ginsburg, Geoffrey S.
    [J]. GENETICS IN MEDICINE, 2013, 15 (04) : 258 - 267
  • [10] Mason J., 1997, FAMILY MATTERS, P31