families;
disability;
social model of disability;
disabled children;
prejudice;
D O I:
10.1080/15017419.2013.865671
中图分类号:
R49 [康复医学];
学科分类号:
100215 ;
摘要:
According to Carol Thomas, individuals with impairment are subjected to disablism. They are disadvantaged in material areas of life and also in the non-material domain of psycho-emotional well-being, by the impact of negative ideas, images and stereotypes about impairment and disability. Families with children with impairment have also been described as disadvantaged. Whether this disadvantage is the result of disablism is unknown. This study explored how disadvantage affects families with a child with impairment using Thomas' iteration of the social model of disability. Twelve mothers were interviewed to understand their everyday routines and the influence of impairment in their family life. Family members did encounter prejudice associated with impairment, however, the mothers were able to 'stand aside' from this such that their psycho-emotional well-being was not harmed as Thomas describes for individuals with impairment. These families are nevertheless disadvantaged in that they do not enter social interactions on an equal footing with others. This paper describes the ways in which the mothers resisted prejudice. It also suggests that Thomas' model may benefit from considering the harms of disablism from this perspective.
机构:
Massachusetts Gen Hosp, Dept Med, Boston, MA USA
Harvard Med Sch, Boston, MA USA
Mongan Inst Ctr Aging & Serious Illness, Dept Med, Div Palliat Care & Geriatr, Boston, MA 02114 USAMassachusetts Gen Hosp, Dept Med, Boston, MA USA
Ritchie, Christine Seel
Patel, Kanan
论文数: 0引用数: 0
h-index: 0
机构:
Univ Calif San Francisco, Dept Med, San Francisco, CA USAMassachusetts Gen Hosp, Dept Med, Boston, MA USA
Patel, Kanan
Boscardin, John
论文数: 0引用数: 0
h-index: 0
机构:
Univ Calif San Francisco, Dept Med, San Francisco, CA USAMassachusetts Gen Hosp, Dept Med, Boston, MA USA
Boscardin, John
Miaskowski, Christine
论文数: 0引用数: 0
h-index: 0
机构:
Univ Calif San Francisco, Sch Nursing, Dept Physiol Nursing, San Francisco, CA USAMassachusetts Gen Hosp, Dept Med, Boston, MA USA
Miaskowski, Christine
Vranceanu, Ana-Maria
论文数: 0引用数: 0
h-index: 0
机构:
Harvard Med Sch, Boston, MA USA
Massachusetts Gen Hosp, Dept Psychiat, Boston, MA USAMassachusetts Gen Hosp, Dept Med, Boston, MA USA
Vranceanu, Ana-Maria
Whitlock, Elizabeth
论文数: 0引用数: 0
h-index: 0
机构:
Univ Calif San Francisco, Dept Anesthesia, San Francisco, CA USAMassachusetts Gen Hosp, Dept Med, Boston, MA USA
Whitlock, Elizabeth
Smith, Alexander
论文数: 0引用数: 0
h-index: 0
机构:
Univ Calif San Francisco, Dept Med, San Francisco, CA USAMassachusetts Gen Hosp, Dept Med, Boston, MA USA
机构:
Penn State Univ, Human Dev & Family Studies, University Pk, PA USA
Penn State Univ, Biobehav Hlth Bldg, University Pk 16802, PA USAPenn State Univ, Human Dev & Family Studies, University Pk, PA USA
Gedaly, Lindsey R.
Cifelli, Joseph A.
论文数: 0引用数: 0
h-index: 0
机构:
Penn State Univ, Human Dev & Family Studies, University Pk, PA USAPenn State Univ, Human Dev & Family Studies, University Pk, PA USA
Cifelli, Joseph A.
Feinberg, Mark E.
论文数: 0引用数: 0
h-index: 0
机构:
Penn State Univ, Human Dev & Family Studies, University Pk, PA USAPenn State Univ, Human Dev & Family Studies, University Pk, PA USA
Feinberg, Mark E.
Hostetler, Michelle L.
论文数: 0引用数: 0
h-index: 0
机构:
Penn State Univ, Human Dev & Family Studies, University Pk, PA USAPenn State Univ, Human Dev & Family Studies, University Pk, PA USA
机构:
Univ Pittsburgh, Sch Med, S530 Alan Magee Scaife Hall,3550 Terrace St, Pittsburgh, PA 15213 USAUniv Pittsburgh, Sch Med, S530 Alan Magee Scaife Hall,3550 Terrace St, Pittsburgh, PA 15213 USA
Huynh, Kevin H.
Mckernan, Gina
论文数: 0引用数: 0
h-index: 0
机构:Univ Pittsburgh, Sch Med, S530 Alan Magee Scaife Hall,3550 Terrace St, Pittsburgh, PA 15213 USA
Mckernan, Gina
Houtrow, Amy
论文数: 0引用数: 0
h-index: 0
机构:
Univ Pittsburgh, Sch Med, Dept Phys Med & Rehabil, Pittsburgh, PA USAUniv Pittsburgh, Sch Med, S530 Alan Magee Scaife Hall,3550 Terrace St, Pittsburgh, PA 15213 USA
Houtrow, Amy
Yu, Justin
论文数: 0引用数: 0
h-index: 0
机构:
Univ Pittsburgh, Div Palliat Care, Sch Med, Pittsburgh, PA USA
Univ Pittsburgh, Pediat Hosp Med, Sch Med, Dept Pediat, Pittsburgh, PA USA
UPMC Childrens Hosp, Pittsburgh, PA USAUniv Pittsburgh, Sch Med, S530 Alan Magee Scaife Hall,3550 Terrace St, Pittsburgh, PA 15213 USA