Shared medical appointments for children and adolescents with type 1 diabetes: perspectives and experiences of patients, parents, and health care providers

被引:21
|
作者
Mejino, Arlene [1 ]
Noordman, Janneke [1 ]
van Dulmen, Sandra [1 ,2 ,3 ]
机构
[1] Netherlands Inst Hlth Serv Res NIVEL, Utrecht, Netherlands
[2] Radboud Univ Nijmegen, Med Ctr, Dept Primary & Community Care, Nijmegen, Netherlands
[3] Buskerud Univ Coll, Dept Hlth Sci, Drammen, Norway
来源
ADOLESCENT HEALTH MEDICINE AND THERAPEUTICS | 2012年 / 3卷
关键词
child; adolescent; diabetes mellitus type 1; pediatrics; shared medical appointment;
D O I
10.2147/AHMT.S32417
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Aims: This study examined the perspectives and experiences of patients, parents, and health care providers with shared medical appointments (SMAs) for children and adolescents with type 1 diabetes. Specifically studied were reasons to attend SMAs, perceived differences between SMAs and individual medical appointments, patient-valued health care aspects, and providers' performance. Methods: Fifty-two patients, 8 parents, and 36 health care providers participated. Perspectives on SMAs were assessed with questionnaires and an online focus group. Data was analyzed using descriptive statistics. Results: Health care providers had work-related reasons to conduct SMAs. Patients and - parents primarily valued the presence of other patients during SMAs. According to health care providers and patients, a higher or similar amount of information was discussed during SMAs as opposed to individual appointments, respectively. SMAs did contain more discussion about lifestyle. Most consultation aspects considered important by the patients were performed by their health care providers. Patient satisfaction with SMAs did tend to decrease after 3 months. Parents were somewhat more critical about SMAs. Conclusions: Health care providers, patients, and parents were generally positive about SMAs. Future studies should examine the impact of the presence of parents and different health care providers during SMAs, and that of differences in patient age, type of insulin treatment, and disease-related problems.
引用
收藏
页码:75 / 83
页数:9
相关论文
共 36 条
  • [31] How do parents of children with type 1 diabetes mellitus cope and how does this condition affect caregivers' mental health?
    Khemakhem, R.
    Dridi, Y.
    Hamza, M.
    Ben Hamouda, A.
    Khlayfia, Z.
    Ouerda, H.
    Halioui, S.
    Siala, N.
    Belhadj, A.
    Maherzi, A.
    ARCHIVES DE PEDIATRIE, 2020, 27 (05): : 265 - 269
  • [32] The impact of continuous subcutaneous insulin infusion on health-related quality of life in children and adolescents with type 1 diabetes
    Juliusson, Petur Benedikt
    Graue, Marit
    Wentzel-Larsen, Tore
    Sovik, Oddmund
    ACTA PAEDIATRICA, 2006, 95 (11) : 1481 - 1487
  • [33] Associations of Diabetes-related and Health-related Quality of Life With Glycemic Levels in Adolescents With Type 1 Diabetes Preparing to Transition to Adult Care
    Lafontaine, Simon
    Mok, Elise
    Frei, Jennifer
    Henderson, Melanie
    Rahme, Elham
    Dasgupta, Kaberi
    Nakhla, Meranda
    CANADIAN JOURNAL OF DIABETES, 2023, 47 (06) : 525 - 531
  • [34] Exploring the Needs and Preferences of Users and Parents to Design a Mobile App to Deliver Mental Health Peer Support to Adolescents With Type 1 Diabetes: Qualitative Study
    Yakubu, Titilola, I
    Jhajj, Poonamdeep
    Pawer, Samantha
    West, Nicholas C.
    Amed, Shazhan
    Tang, Tricia S.
    Gorges, Matthias
    JMIR DIABETES, 2025, 10
  • [35] Health-related quality of life among Norwegian children and adolescents with type 1 diabetes on intensive insulin treatment: a population-based study
    Froisland, Dag Helge
    Graue, Marit
    Markestad, Trond
    Skrivarhaug, Torild
    Wentzel-Larsen, Tore
    Dahl-Jorgensen, Knut
    ACTA PAEDIATRICA, 2013, 102 (09) : 889 - 895
  • [36] Trajectories of Health-Related Quality of Life and HbA1c Values of Children and Adolescents With Diabetes Mellitus Type 1 Over 6 Months: A Longitudinal Observational Study
    Fischer, Kathrin I.
    Fischer, Felix H.
    Barthel, Dana
    Otto, Christiane
    Thyen, Ute
    Klein, Marcus
    Walter, Otto
    Ravens-Sieberer, Ulrike
    Rose, Matthias
    Nolte, Sandra
    FRONTIERS IN PEDIATRICS, 2020, 7