Is there a doctor in the house? The presence of physicians in the direct-to-consumer genetic testing context

被引:0
|
作者
Howard, Heidi Carmen [1 ,2 ]
Borry, Pascal [1 ,3 ,4 ]
机构
[1] Katholieke Univ Leuven, Ctr Biomed Eth & Law, Kapucijnenvoer 35,Box 7001, B-3000 Leuven, Belgium
[2] Univ Basel, Inst Bio & Med Eth Basel, CH-4056 Basel, Switzerland
[3] Vrije Univ Amsterdam, Med Ctr, EMGO Inst Hlth & Care Res, Dept Med Humanities, Amsterdam, Netherlands
[4] Vrije Univ Amsterdam, Med Ctr, EMGO Inst Hlth & Care Res, Dept Clin Genet, Amsterdam, Netherlands
关键词
Direct-to-consumer; Genetic testing; Ethical;
D O I
10.1007/s12687-011-0062-0
中图分类号
Q3 [遗传学];
学科分类号
071007 ; 090102 ;
摘要
Over the last couple of years, many commercial companies, the majority of which are based in the USA, have been advertising and offering direct-to-consumer (DTC) genetic testing services outside of the established health care system, and often without any involvement from a health care professional. In the last year, however, a number of DTC genetic testing companies have changed their provision model such that consumers must now contact a health care professional before being able to order the genetic testing service. In discussing the advent of this new model of service provision, this article also reviews the ethical and social issues surrounding DTC genetic testing and addresses the potential motivations for change, some barriers to achieving truly appropriate medical supervision and the present reality of DTC genetic testing for some psychiatric and neurological disorders. Since the advent of these commercial activities, critics have pointed a finger at the lack of medical supervision surrounding these services. The discussion herein, however, reveals how difficult it may be, despite the addition of a physician, to actually achieve adequate medical supervision within the present context of DTC genetic testing.
引用
收藏
页码:105 / 112
页数:8
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