Experiences of Australian parents caring for children with asthma: it gets easier

被引:18
作者
Barton, Christopher [1 ]
Sulaiman, Nabil [2 ]
Clarke, David [3 ]
Abramson, Michael [1 ]
机构
[1] Monash Univ, Cent & Eastern Clin Sch, Dept Epidemiol & Prevent Med, Melbourne, Vic 3004, Australia
[2] Univ Melbourne, Dept Gen Practice, Carlton, Vic 3053, Australia
[3] Monash Med Ctr, Dept Psychol Med, Clayton, Vic 3168, Australia
基金
英国医学研究理事会;
关键词
Asthma; Attitude to health; Care-givers; Coping behaviour; Health behaviours;
D O I
10.1179/174239505X72050
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Objective: To describe the experiences of Australian parents caring for children with asthma. Methods: A combination of random sampling, purposeful sampling and quota sampling was used to select care-givers from general practices in Melbourne's north and north-western suburbs. Data collection involved a single semi-structured in-depth interview with 21 parents caring for a child with asthma. Thematic analysis was aided by QSR NVivo. Results: Children experienced predominantly mild-to-moderate, episodic asthma. Six themes emerged from the interviews: emotions and behaviours, coping strategies, disruption to activities, health and treatment beliefs, problems with asthma management, and relationships with doctors. Parents' experiences and health beliefs impacted on their management of asthma. These may act as barriers to optimal asthma care in some families. The overriding theme to emerge was 'it gets easier'. It got easier with time because the children could communicate more effectively, and were better able to take care of themselves, and their asthma became less severe or less of a problem. Discussion: This research has highlighted the need for health professionals to emphasize the chronic nature of asthma, but negotiate strategies with care-givers lo optimize the use of asthma medica Lions, with consideration being given to care-givers' fears, frustrations and health beliefs.
引用
收藏
页码:303 / 314
页数:12
相关论文
共 21 条
[1]   Patient preferences for autonomy in decision making in asthma management [J].
Adams, RJ ;
Smith, BJ ;
Ruffin, RE .
THORAX, 2001, 56 (02) :126-132
[2]   MANAGING CHRONIC ILLNESS IN THE FAMILY - WOMEN AS CARETAKERS [J].
ANDERSON, JM ;
ELFERT, H .
JOURNAL OF ADVANCED NURSING, 1989, 14 (09) :735-743
[3]  
Australian Centre for Asthma Monitoring. Asthma in Australia, 2003, AIHW ASTHM SER, V1
[4]  
Barton C A, 2005, Prim Care Respir J, V14, P143, DOI 10.1016/j.pcrj.2004.10.006
[5]   A qualitative study of action plans for asthma [J].
Douglass, J ;
Aroni, R ;
Goeman, D ;
Stewart, K ;
Sawyer, S ;
Thien, F ;
Abramson, M .
BRITISH MEDICAL JOURNAL, 2002, 324 (7344) :1003-1005
[6]   Patients' views of the burden of asthma: a qualitative study [J].
Goeman, DP ;
Aroni, RA ;
Stewart, K ;
Sawyer, SM ;
Thien, FCK ;
Abramson, MJ ;
Douglass, JA .
MEDICAL JOURNAL OF AUSTRALIA, 2002, 177 (06) :295-299
[7]  
Horner S D, 1998, J Pediatr Nurs, V13, P356, DOI 10.1016/S0882-5963(98)80024-9
[8]  
Ireland L M, 1997, Br J Nurs, V6, P1059
[9]  
Jerrett M D, 1996, Clin Nurs Res, V5, P294, DOI 10.1177/105477389600500305
[10]   Knowledge, attitudes, and practices of parents of asthmatic children in Cape Town [J].
Jones, SL ;
Weinberg, M ;
Ehrlich, RI ;
Roberts, K .
JOURNAL OF ASTHMA, 2000, 37 (06) :519-528