Latino Families with a Child with Prader-Willi Syndrome: Exploring Needs for Support

被引：8

作者：

Chaij, Carina ^{[1
]}

Han, Meekyung ^{[2
]}

Graziano, Lisa ^{[3
]}

机构：

[1] San Andreas Reg Ctr, Campbell, CA USA

[2] San Jose State Univ, Coll Appl Sci & Arts, Sch Social Work, One Washington Sq, San Jose, CA 95192 USA

[3] Prader Willi Calif Fdn, Redondo Beach, CA USA

来源：

JOURNAL OF SOCIAL WORK IN DISABILITY & REHABILITATION | 2014年 / 13卷 / 03期

关键词：

children; disability; empathy and support; ethnic minorities; individuals with disabilities; qualitative research; social work; social work and disability;

D O I：

10.1080/1536710X.2014.912184

中图分类号：

C916 [社会工作、社会管理、社会规划];

学科分类号：

1204 ;

摘要：

Prader-Willi syndrome (PWS) is a complex, genetically based disorder; caring for a family member with a disability such as PWS brings significant challenges to the whole family. However, no research has been conducted focusing on the impact of PWS in the dynamics of Latino families. This qualitative study explored the challenges and need for support services among Latino families of children with PWS. Findings of the study suggest the need for support services geared toward the whole family unit to help members cope with daily challenges at home.

引用

页码：207 / 225

页数：19

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