Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team

被引：3
作者：
Lindsey Boechler
Steven Renwick
Abdullateef Alabi
Harold de la Torre
Susheel Kumar
Harmanpreet Singh
Roshan Xavier
Dalise Hector
Lauren McTaggart
Jennifer Shrubsole
机构：
[1] Saskatchewan Polytechnic,Centre for Health Research, Improvement and Scholarship
[2] Saskatchewan Polytechnic,undefined
[3] Patient Partner,undefined
[4] Patient Partner,undefined
[5] Patient Partner,undefined
[6] Prairie Skies Integration Network,undefined
[7] Moose Jaw Multicultural Council,undefined
[8] Saskatchewan Polytechnic,undefined
来源：
Research Involvement and Engagement | / 7卷 / 1期
关键词：
Patient-oriented research; Immigrant health; Health disparities; Accessible health care; Canada;
D O I：
10.1186/s40900-021-00323-9
中图分类号：
学科分类号：
摘要：
Immigrants often find accessing and navigating the healthcare system difficult upon arriving in Canada. Difficulties are often due to cultural differences, language barriers, limited health literacy, and health system complexity. This article shares the experiences of our research team as we engaged in patient-oriented research (POR) to better understand the unique barriers faced by newcomers trying to access and navigate the health system after immigrating to Canada.
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  • [1] Pauly B(2019)What is missing from "patient-oriented research?” A view from public health systems and services Healthcare Policy 15 10-19
  • [2] Urbanoski K(2018)Patient-oriented research competencies in health (PORCH) for patients, healthcare providers, decision-makers and researchers: Protocol of a scoping review Syst Rev 7 101-248
  • [3] Hartney E(2017)Patient and researcher engagement in health research: A parent's perspective Pediatrics 16 237-387
  • [4] Mallidou AA(2019)Exploring ethical issues related to patient engagement in healthcare: Patient, clinician and researcher’s perspectives Journal of Bioethical Inquiry 14 385-33
  • [5] Frisch N(2021)Patient commentary: Added value and validity to research outcomes through thoughtful multifaceted patient-oriented research Patient 354 28-359
  • [6] Doyle-Waters MM(2018)A home for patient-oriented research CMAJ 48 352-539
  • [7] Amirav I(2016)“Nothing about us without us”—patient partnership in medical conferences BMJ 35 523-undefined
  • [8] Vandall-Walker V(2018)Patient engagement in Canada: A scoping review of the ‘how’ and ‘what’ of patient engagement in health research Health Research Policy and Systems 23 undefined-undefined
  • [9] Rasiah J(2017)A qualitative study on african immigrant and refugee families’ experiences of accessing primary health care services in Manitoba, Canada: It’s not easy! International Journal of Equity in Health undefined undefined-undefined
  • [10] Saunders L(2018)Confronting barriers to improve healthcare literacy and cultural competency in disparate populations Nursing undefined undefined-undefined
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