The Impact of COVID-19 Restrictions on Psychological Distress in Family Caregivers of Children with Neurodevelopmental Disability in the UK

被引:0
作者
Karri Gillespie-Smith
Doug McConachie
Carrie Ballantyne
Bonnie Auyeung
Karen Goodall
机构
[1] University of Edinburgh,Department of Health and Clinical Psychology, School of Health in Social Science
[2] University of West of Scotland,Division of Psychology
[3] University of Edinburgh,Department of Psychology, School of Philosophy, Psychology and Language Sciences
来源
Journal of Autism and Developmental Disorders | 2023年 / 53卷
关键词
COVID-19; Caregivers; Coping; Challenging behaviours; Neurodevelopmental disabilities; Psychological distress;
D O I
暂无
中图分类号
学科分类号
摘要
Caregivers of a child with a neurodevelopmental disability are more vulnerable to mental health difficulties. These difficulties are influenced by the child’s challenging behaviours, and the caregiver’s coping strategies; factors impacted by the COVID-19 pandemic. An online mixed methods survey was conducted on caregivers of children with neurodevelopmental disabilities (n = 43) and children who are typically developing (n = 67). The results showed that presence of challenging behaviours related to neurodevelopmental disability, and caregiver coping strategies predicted caregiver psychological distress during lockdown. Themes that emerged included ‘confusing messages and guidance’, ‘loss of freedom’ and ‘unsupported and forgotten’. The results demonstrate the pressing need for the implementation of appropriate support to protect the mental health of caregivers across the UK.
引用
收藏
页码:1573 / 1587
页数:14
相关论文
共 272 条
  • [1] Anderson RM(2020)How will country-based mitigation measures influence the course of the COVID-19 epidemic? The Lancet 395 931-934
  • [2] Heesterbeek H(2021)COVID-19 impact on psychological outcomes of parents, siblings and children with intellectual disability: Longitudinal before and during lockdown design Journal of Intellectual Disability Research 65 397-404
  • [3] Klinkenberg D(1994)With a little help from our friends: Social support as a source of well-being and of coping with stress Journal of Sociology and Social Welfare 21 127-152
  • [4] Hollingsworth TD(2003)Pre-school children with and without developmental delay: Behaviour problems and parenting stress over time Journal of Intellectual Disability Research 47 217-230
  • [5] Bailey T(2017)The depression, anxiety and stress scale (DASS-21) as a screener for depression in substance use disorder inpatients: A pilot study European Addiction Research 23 260-268
  • [6] Hastings RP(2008)Aggressive challenging behaviour and intellectual disability Current Opinion in Psychiatry 21 454-458
  • [7] Totsika V(2006)Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact Journal of Intellectual Disability Research 50 184-198
  • [8] Bailey D(1994)Epidemiology and prevalence of psychopathology in people with mental retardation Journal of Consulting and Clinical Psychology 62 17-101
  • [9] Wolfe DM(2006)Using thematic analysis in psychology Qualitative Research in Psychology 3 77-225
  • [10] Wolfe CR(2019)‘A starting point for your journey, not a map’: Nikki Hayfield in conversation with Virginia Braun and Victoria Clarke about thematic analysis Qualitative Research in Psychology 25 220-843