Religious Perspectives on Precision Medicine in Singapore

被引:0
作者
Hui Jin Toh
Angela Ballantyne
Serene Ai Kiang Ong
Chitra Sankaran
Hung Yong Tay
Malminderjit Singh
Raza Zaidi
Roland Chia
Sarabjeet Singh
Swami Samachittananda
You Guang Shi
Zhixia Tan
Tamra Lysaght
机构
[1] Centre for Biomedical Ethics,Department of Primary Health Care and General Practice
[2] Yong Loo Lin School of Medicine,undefined
[3] University of Otago,undefined
来源
Asian Bioethics Review | 2021年 / 13卷
关键词
Precision medicine; Religious views; Health data sharing; Genomics; Private sector; Health equity;
D O I
暂无
中图分类号
学科分类号
摘要
Precision medicine (PM) aims to revolutionise healthcare, but little is known about the role religion and spirituality might play in the ethical discourse about PM. This Perspective reports the outcomes of a knowledge exchange fora with religious authorities in Singapore about data sharing for PM. While the exchange did not identify any foundational religious objections to PM, ethical concerns were raised about the possibility for private industry to profiteer from social resources and the potential for genetic discrimination by private health insurers. According to religious authorities in Singapore, sharing PM data with private industry will require a clear public benefit and robust data governance that incorporates principles of transparency, accountability and oversight.
引用
收藏
页码:473 / 483
页数:10
相关论文
共 35 条
[1]  
Hill Elizabeth M(2013)"Let's get the best quality research we can": Public awareness and acceptance of consent to use existing data in health research: A systematic review and qualitative study BMC Medical Research Methodology 13 72-127
[2]  
Turner Emma L(2019)The public perception of the facilitators and barriers to implementing personalized medicine: A systematic review Personalised Medicine 55 126-826
[3]  
Martin Richard M(2014)Healthcare in Singapore: the present and future Singapore Medical Journal 140A 813-113
[4]  
Donovan Jenny L(2019)Patients’ and public views and attitudes towards the sharing of health data for research: A narrative review of the empirical evidence Journal of Medical Ethics 21 107-1065
[5]  
Holden Ciara(2006)Acceptance of genetic testing for hereditary breast ovarian cancer among study enrollees from an African American kindred American Journal of Medical Genetics Part A 14 1053-undefined
[6]  
Bignell Lauren(2019)"I don't want to be Henrietta Lacks": Diverse patient perspectives on donating biospecimens for precision medicine research Genetics in Medicine 20 e48316-undefined
[7]  
Mukhopadhyay Somnath(2014)Attitudes of research participants and the general public towards genomic data sharing: A systematic literature review Expert Review of Molecular Diagnostics undefined undefined-undefined
[8]  
Jones Christina(2019)Re-identifiability of genomic data and the GDPR MBO Reports undefined undefined-undefined
[9]  
How Choon How(undefined)undefined undefined undefined undefined-undefined
[10]  
Fock Kwong Ming(undefined)undefined undefined undefined undefined-undefined