Development of a disease-specific quality of life questionnaire for adult patients with hereditary angioedema due to C1 inhibitor deficiency (HAE-QoL): Spanish multi-centre research project

被引：0
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作者：
Nieves Prior
Eduardo Remor
Carmen Gómez-Traseira
Concepción López-Serrano
Rosario Cabañas
Javier Contreras
Ángel Campos
Victoria Cardona
Stefan Cimbollek
Teresa González-Quevedo
Mar Guilarte
Dolores Hernández Fernández de Rojas
Carmen Marcos
María Rubio
Miguel Ángel Tejedor-Alonso
Teresa Caballero
机构：
[1] IdiPaz (Hospital La Paz Health Research Institute),Allergy Department
[2] Universidad Autónoma de Madrid,Allergy Unit
[3] Hospital Universitario La Fe,undefined
[4] Hospital Universitario Vall d’Hebron,undefined
[5] Hospital Universitario Virgen del Rocío,undefined
[6] Hospital Xeral Cíes,undefined
[7] Hospital General Universitario Gregorio Marañón,undefined
[8] Hospital Universitario Fundación Alcorcón,undefined
[9] Biomedical Research Network on Rare Diseases U754 (CIBERER),undefined
来源：
Health and Quality of Life Outcomes | / 10卷
关键词：
Hereditary angioedema; C1 inhibitor deficiency; Quality of Life; Questionnaire; Qualitative methodology;
D O I：
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