Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

被引：0

作者：

Svenja Litzkendorf

Martin Frank

Ana Babac

Daniel Rosenfeldt

Franziska Schauer

Tobias Hartz

J.-Matthias Graf von der Schulenburg

机构：

[1] Leibniz University Hannover,Center for Health Economics Research Hannover (CHERH)

[2] Ostfalia University of Applied Science,Faculty of Public Health Services

[3] University of Freiburg,Department of Dermatology, Medical Center

[4] Faculty of Medicine,undefined

[5] University of Freiburg,undefined

[6] Clinical Cancer Registry of Lower Saxony,undefined

来源：

BMC Public Health | / 20卷

关键词：

Rare diseases; Information sources; Informants; Health information seeking; Qualitative research; Content analysis; Self-help; Online information; Written information;

D O I：

暂无

中图分类号：

学科分类号：

摘要：

引用

共 14 条

[1]

Litzkendorf S(2016)Information needs of people with rare diseases – what information do patients and their relatives require? Journal of Rare Disorders: Diagnosis & Therapy 2 1-11

[2]

Babac A(2010)Multiple sclerosis: patients’ information sources and needs on disease symptoms and management Patient Prefer Adherence 4 157-161

[3]

Rosenfeldt D(2016)Implementing ‘self-help friendliness’ in German hospitals: a longitudinal study Health Promot Int 31 303-313

[4]

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[5]

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