“Why them, why me, why us?” The experiences of parents of children with lysosomal acid lipase deficiency: an interpretative phenomenological analysis study

被引：0
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作者：
S. Hassall
D. M. Smith
S. Rust
S. A. Jones
A. Wittkowski
机构：
[1] Manchester Academic Health Science Centre,Faculty of Biology, Medicine and Health, Division of Psychology and Mental Health, School of Health Sciences
[2] The University of Manchester,undefined
[3] Greater Manchester Mental Health NHS Foundation Trust,undefined
[4] Manchester Academic Health Science Centre,undefined
[5] Royal Manchester Children’s Hospital,undefined
来源：
Orphanet Journal of Rare Diseases | / 17卷
关键词：
Qualitative; Parents; Paediatrics; Wolman disease; Lived experience;
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