Epidemiology of gastrostomy insertion for children and adolescents with intellectual disability

被引：0
作者：
Kingsley Wong
Helen Leonard
Glenn Pearson
Emma J Glasson
David Forbes
Madhur Ravikumara
Peter Jacoby
Jenny Bourke
Preeyaporn Srasuebkul
Julian Trollor
Andrew Wilson
Lakshmi Nagarajan
Jenny Downs
机构：
[1] The University of Western Australia,Telethon Kids Institute, Centre for Child Health Research
[2] The University of Western Australia,Medical School
[3] Department of Health,Department of Gastroenterology
[4] Government of Western Australia,Department of Developmental Disability Neuropsychiatry, School of Psychiatry
[5] Perth Children’s Hospital,Department of Respiratory Medicine
[6] UNSW Sydney,School of Paediatrics
[7] Perth Children’s Hospital,School of Physiotherapy and Exercise Science
[8] The University of Western Australia,Children’s Neuroscience Service, Department of Neurology
[9] Curtin University,undefined
[10] Perth Children’s Hospital,undefined
来源：
European Journal of Pediatrics | 2019年 / 178卷
关键词：
Gastrostomy; Intellectual disability; Epidemiology; Accessibility; Incidence;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
The largest group of recipients of pediatric gastrostomy have neurological impairment with intellectual disability (ID). This study investigated trends in first gastrostomy insertion according to markers of disadvantage and ID etiology. Linked administrative and health data collected over a 32-year study period (1983–2014) for children with ID born between 1983 and 2009 in Western Australia were examined. The annual incidence rate change over calendar year was calculated for all children and according to socioeconomic status, geographical remoteness, and Aboriginality. The most likely causes of ID were identified using available diagnosis codes in the linked data set. Of 11,729 children with ID, 325 (2.8%) received a first gastrostomy within the study period. The incidence rate was highest in the 0–2 age group and there was an increasing incidence trend with calendar time for each age group under 6 years of age. This rate change was greatest in children from the lowest socioeconomic status quintile, who lived in regional/remote areas or who were Aboriginal. The two largest identified groups of ID were genetically caused syndromes (15.1%) and neonatal encephalopathy (14.8%).
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页码：351 / 361
页数：10
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