Ethical Issues in Genetic Testing for Inherited Cancer Predisposition Syndromes: the Potentially Conflicting Interests of Patients and Their Relatives

[1] Chivers Seymour K(2010)What facilitates or impedes family communication following genetic testing for cancer risk? A systematic review and meta-synthesis of priJoan qualitative research J Genet Couns 19 330-342

[2] Addington-Hall J(2003)A social network analysis of communication about hereditary nonpolyposis colorectal cancer genetic testing and family functioning Cancer Epidemiol Biomark Prev 12 304-313

[3] Lucassen AM(2018)Limitations and pitfalls of using family letters to communicate genetic risk: a qualitative study with patients and healthcare professionals J Genet Couns 27 689-701

[4] Foster CL(1995)Huntington disease: a case study describing the complexities and nuances of predictive testing of monozygotic twins J Genet Couns 4 125-137

[5] Koehly LM(2013)Ethical issues and Huntington’s disease S Afr Med J 103 1023-1026

[6] Peterson SK(2010)An investigation of patients’ motivations for their participation in genetics-related research J Med Ethics 36 37-45

[7] Watts BG(2016)Genetic testing for Lynch syndrome: family communication and motivation Familial Cancer 15 63-73

[8] Kempf KK(2016)Communicating genetic test results within the family: is it lost in translation? A survey of relatives in the randomized six-step study Familial Cancer 15 697-706

[9] Vernon SW(2018)Alerting relatives about heritable risks: the limits of confidentiality BMJ 361 k1409-186

[10] Gritz ER(1994)Pate v. Threlkel Wests South Report 640 183-1193

[1] Chivers Seymour K(2010)What facilitates or impedes family communication following genetic testing for cancer risk? A systematic review and meta-synthesis of priJoan qualitative research J Genet Couns 19 330-342

[2] Addington-Hall J(2003)A social network analysis of communication about hereditary nonpolyposis colorectal cancer genetic testing and family functioning Cancer Epidemiol Biomark Prev 12 304-313

[3] Lucassen AM(2018)Limitations and pitfalls of using family letters to communicate genetic risk: a qualitative study with patients and healthcare professionals J Genet Couns 27 689-701

[4] Foster CL(1995)Huntington disease: a case study describing the complexities and nuances of predictive testing of monozygotic twins J Genet Couns 4 125-137

[5] Koehly LM(2013)Ethical issues and Huntington’s disease S Afr Med J 103 1023-1026

[6] Peterson SK(2010)An investigation of patients’ motivations for their participation in genetics-related research J Med Ethics 36 37-45

[7] Watts BG(2016)Genetic testing for Lynch syndrome: family communication and motivation Familial Cancer 15 63-73

[8] Kempf KK(2016)Communicating genetic test results within the family: is it lost in translation? A survey of relatives in the randomized six-step study Familial Cancer 15 697-706

[9] Vernon SW(2018)Alerting relatives about heritable risks: the limits of confidentiality BMJ 361 k1409-186

[10] Gritz ER(1994)Pate v. Threlkel Wests South Report 640 183-1193