From tokenism to meaningful engagement: best practices in patient involvement in an EU project

被引：52
作者：
David Supple
Amanda Roberts
Val Hudson
Sarah Masefield
Neil Fitch
Malayka Rahmen
Breda Flood
Willem de Boer
Pippa Powell
Scott Wagers
机构：
[1] UBIOPRED Patient Input Platform,
[2] European Lung Foundation (ELF),undefined
[3] Biosci Consulting,undefined
[4] Asthma UK,undefined
[5] European Federation of Asthma and Airways Diseases Patients’ Associations (EFA),undefined
[6] Lung Foundation (Longfonds),undefined
来源：
Research Involvement and Engagement | / 1卷 / 1期
关键词：
EU project; Patient involvement; Research; Severe asthma;
D O I：
10.1186/s40900-015-0004-9
中图分类号：
学科分类号：
摘要：
This commentary talks about patient involvement in one of the biggest EU projects to date—U-BIOPRED. It describes how people and carers of people with asthma have been able to develop and drive their input and have their voice heard among the >200 healthcare professional project members.
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