Using Bayesian methodology to explore the profile of mental health and well-being in 646 mothers of children with 13 rare genetic syndromes in relation to mothers of children with autism

被引:0
作者
Dawn Adams
Richard P Hastings
Clair Alston-Knox
Rina Cianfaglione
Kate Eden
David Felce
Gemma Griffith
Jo Moss
Chris Stinton
Chris Oliver
机构
[1] School of Psychology,Cerebra Centre for Neurodevelopmental Disorders
[2] University of Birmingham,Autism Centre of Excellence, School of Education and Professional Studies
[3] Griffith University,Centre for Educational Development Appraisal and Research
[4] University of Warwick,Griffith Social and Behavioural Research College
[5] Griffith University,Welsh Centre for Learning Disabilities
[6] Cardiff University,School of Psychology
[7] Bangor University,undefined
来源
Orphanet Journal of Rare Diseases | / 13卷
关键词
Syndrome; Mothers; Mental health; Positive mental health; Genetic syndrome;
D O I
暂无
中图分类号
学科分类号
摘要
引用
收藏
相关论文
共 213 条
  • [21] Moss J(2018)The association between emotional and behavioral problems in children with autism spectrum disorder and psychological distress in their parents: a systematic review and meta-analysis J Autism Dev Disord 48 3393-3415
  • [22] Petty J(2015)The lived experience of US parents of children with autism spectrum disorders: a systematic review and meta-synthesis J Intellect Disabil 19 356-366
  • [23] Montes G(2014)Coping in parents and caregivers of children with autism spectrum disorders (ASD): a review Rev J Autism Dev Disord 1 207-224
  • [24] Halterman JS(2002)Positive perceptions in families of children with developmental disabilities Am J Ment Retard 107 116-127
  • [25] Hayes SA(2015)Positive impact and its relationship to well-being in parents of children with intellectual disability: a literature review Int J Dev Disabil 61 1-19
  • [26] Watson SL(2008)The Prevalence and Phenomenology of Repetitive Behavior in Genetic Syndromes Journal of Autism and Developmental Disorders 39 572-588
  • [27] Paynter J(2003)Angelman syndrome: a review of the clinical and genetic aspects J Med Genet 40 87-95
  • [28] Davies M(2009)Incidence of fragile X syndrome by newborn screening for methylated FMR1 DNA Am J Hum Genet 85 503-514
  • [29] Beamish W(2018)Improving the health and well-being of adults with conditions of a genetic origin: views from professionals, syndrome support groups and parents J Appl Res Intellect Disabil 31 62-75
  • [30] Oliver C(1973)Method of rating behavior characteristics for use in 558 large-scale surveys of mental handicap Psychol Med 3 466-478