Parental Perception of Quality of Life for Children with Autism Spectrum Disorder

被引：0
作者：
Judith Cholewicki
Erik Drasgow
Laura C. Chezan
机构：
[1] University of South Carolina,
[2] Old Dominion University,undefined
来源：
Journal of Developmental and Physical Disabilities | 2019年 / 31卷
关键词：
Quality of life; Children; Autism Spectrum Disorder; Assessment;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
Our purpose for this study was to investigate how parents of children with Autism Spectrum Disorder (ASD) rate their child’s quality of life (QOL). We began by developing a parent proxy-report QOL assessment instrument with subscales and then distributed it statewide to parents of children with ASD. The scale demonstrated strong internal consistency with a full-scale Cronbach’s alpha of .835. Our results indicated that 0% of the parents rated their child as having a poor QOL, 66% rated their child as having a good QOL, and 16% rated their child as having an excellent QOL. Our results support the notion that QOL can be assessed in early childhood to develop and ensure effective programing across the lifespan for an individual with ASD.
引用
收藏
页码：575 / 592
页数：17
相关论文
共 101 条
[1]  
Allik H(2006)Health-related quality of life in parents of school-age children with Asperger syndrome or high-functioning autism Health and Quality of Life Outcomes 4 1-8
[2]  
Larsson JO(2005)Autism after adolescence: Population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood Journal of Autism and Developmental Disorders 35 351-360
[3]  
Smedje H(2011)Aspects of quality of life in adults diagnosed with autism in childhood: A population-based study Autism 15 7-20
[4]  
Billstedt E(2007)Quality of life for people with autism: Raising the standard for evaluating successful outcomes Child and Adolescent Mental Health 12 80-86
[5]  
Gillberg C(2008)Social validation of evidence-based practices in autism by parents, teachers, and administrators Journal of Autism and Developmental Disorders 38 678-692
[6]  
Gillberg C(2006)The construct validity of the client questionnaire of the Wisconsin quality of life index – A cross-validation study International Journal of Methods in Psychiatric Research 12 128-138
[7]  
Billstedt E(2009)Practitioner review: Quality of life in child mental health-conceptual challenges and practical choices Journal of Child Psychology and Psychiatry 50 544-561
[8]  
Gillberg IC(1994)Validity studies the comprehensive quality of life scale (Comqol): Instrument development and psychometric evaluation on college staff and students Educational and Psychological Measurement 54 372-382
[9]  
Gillberg C(2015)Influence of autism traits and executive functioning on quality of life in children with an autism spectrum disorder Journal of Autism and Developmental Disorders 45 2734-2743
[10]  
Burgess AF(2008)Young adult outcome of autism spectrum disorders Journal of Autism and Developmental Disorders 38 739-747
12345678910