Family Experiences with Care for Children with Inherited Metabolic Diseases in Canada: A Cross-Sectional Survey

被引：0
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作者：
Andrea J. Chow
Michael Pugliese
Laure A. Tessier
Pranesh Chakraborty
Ryan Iverson
Doug Coyle
Jonathan B. Kronick
Kumanan Wilson
Robin Hayeems
Walla Al-Hertani
Michal Inbar-Feigenberg
Shailly Jain-Ghai
Anne-Marie Laberge
Julian Little
John J. Mitchell
Chitra Prasad
Komudi Siriwardena
Rebecca Sparkes
Kathy N. Speechley
Sylvia Stockler
Yannis Trakadis
Jagdeep S. Walia
Brenda J. Wilson
Beth K. Potter
机构：
[1] University of Ottawa,School of Epidemiology and Public Health
[2] Children’s Hospital of Eastern Ontario,Department of Pediatrics
[3] University of Ottawa,Division of Clinical and Metabolic Genetics
[4] The Hospital for Sick Children,Department of Medicine
[5] University of Ottawa and Ottawa Hospital Research Institute,Program in Child Health Evaluative Sciences
[6] The Hospital for Sick Children and University of Toronto,Division of Genetics and Genomics
[7] Boston Children’s Hospital and Harvard Medical School,Medical Genetics, Department of Pediatrics
[8] University of Alberta,Genetics, Metabolism and Paediatrics
[9] Stollery Children’s Hospital,Department of Paediatrics
[10] CHU Sainte-Justine and Université de Montréal,Medical Genetics, Department of Pediatrics
[11] McGill University Health Centre,Division of Community Health and Humanities
[12] The Montreal Children’s Hospital,undefined
[13] London Health Sciences Centre,undefined
[14] Western University,undefined
[15] University of Calgary,undefined
[16] Alberta Children’s Hospital,undefined
[17] Western University,undefined
[18] University of British Columbia,undefined
[19] BC Children’s Hospital,undefined
[20] Kingston Health Sciences Centre and Queen’s University,undefined
[21] Memorial University,undefined
来源：
The Patient - Patient-Centered Outcomes Research | 2022年 / 15卷
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页码：171 / 185
页数：14
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