Decision making on HSCT in patients with hemoglobinopathies; an EBMT Pediatric Diseases Working Party and Inborn Errors Working Party scenario-based survey on physicians’ perspectives

被引：0
|
作者：
Hilda Mekelenkamp
Martine de Vries
Benny Markovitch
Tiarlan Sirait
Arwen H. Pieterse
Joëll Bense
Katharina Kleinschmidt
Michael H. Albert
Bénédicte Neven
Selim Corbacioglu
Arjan Lankester
Frans Smiers
机构：
[1] Leiden University Medical Center,Willem
[2] Leiden University Medical Center,Alexander Children’s Hospital, Department of Pediatrics
[3] EBMT Leiden Study Unit,Department of Medical Ethics and Health Law
[4] Leiden University Medical Center,Medical Decision Making, Department of Biomedical Data Sciences
[5] University of Regensburg,Department of Pediatric Hematology, Oncology, and Stem Cell Transplantation
[6] University Hospital,Department of Pediatrics, Dr. von Hauner Children’s Hospital
[7] LMU,undefined
[8] Unité d’Immuno-hematologie et Rhumatologie Pédiatrique,undefined
[9] Hôpital Necker-Enfants Malades,undefined
[10] Assistance Publique Hopitaux de Paris,undefined
[11] Université de Paris,undefined
来源：
Bone Marrow Transplantation | 2023年 / 58卷
关键词：
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
页码：584 / 586
页数：2
相关论文
共 44 条
  • [31] Hematopoietic stem cell transplantation for pediatric patients with non-anaplastic peripheral T-cell lymphoma. An EBMT pediatric diseases working party study
    Moser, Olga
    Ngoya, Maud
    Galimard, Jacques-Emmanuel
    Dalissier, Arnaud
    Dalle, Jean Hugues
    Kalwak, Krzysztof
    Woessmann, Wilhelm
    Burkhardt, Birgit
    Bierings, Marc
    Gonzalez-Vicent, Marta
    Corral, Lucia Lopez
    Mellgren, Karin
    Attarbaschi, Andishe
    Bourhis, Jean Henri
    Carlson, Kristina
    Corbacioglu, Selim
    Drabko, Katarzyna
    Sundin, Mikael
    Toporski, Jacek
    Cario, Gunnar
    Kontny, Udo
    BONE MARROW TRANSPLANTATION, 2024, 59 (05) : 604 - 614
  • [32] Hematopoietic stem cell transplantation for pediatric patients with non-anaplastic peripheral T-cell lymphoma. An EBMT pediatric diseases working party study
    Olga Moser
    Maud Ngoya
    Jacques-Emmanuel Galimard
    Arnaud Dalissier
    Jean Hugues Dalle
    Krzysztof Kalwak
    Wilhelm Wössmann
    Birgit Burkhardt
    Marc Bierings
    Marta Gonzalez-Vicent
    Lucía López Corral
    Karin Mellgren
    Andishe Attarbaschi
    Jean Henri Bourhis
    Kristina Carlson
    Selim Corbacioglu
    Katarzyna Drabko
    Mikael Sundin
    Jacek Toporski
    Gunnar Cario
    Udo Kontny
    Bone Marrow Transplantation, 2024, 59 : 604 - 614
  • [33] Survey of supportive care standards for paediatric allogeneic stem cell transplantation patients in Europe: A first report from the EBMT paediatric diseases working party
    Peters, C
    Ladenstein, R
    Ochsenreiter, W
    Potschger, U
    Gadner, H
    Dini, G
    Klingebiel, T
    Locatelli, F
    Vossen, J
    Niethammer, D
    BONE MARROW TRANSPLANTATION, 1996, 18 : 17 - 24
  • [34] Selecting patients with sickle cell disease for gene addition or gene editing-based therapeutic approaches: Report on behalf of a joint EHA Specialized Working Group and EBMT Hemoglobinopathies Working Party consensus conference
    de Franceschi, Lucia
    Locatelli, Franco
    Rees, David
    Chabannon, Christian
    Dalle, Jean-Hugues
    Rivella, Stefano
    Iolascon, Achille
    Lobitz, Stephan
    Abboud, Miguel R.
    de la Fuente, Josu
    Flevari, Pagona
    Angelucci, Emanuele
    de Montalembert, Mariane
    HEMASPHERE, 2025, 9 (03):
  • [35] Solid organ transplantation (SOT) after haematopoietic stem cell transplantation (HSCT) in pediatric patients. a multicentric retrospective EBMT study; on behalf of Paediatric Disease Working Party (PDWP)
    Faraci, M.
    Dalissier, A.
    Bertaina, A.
    Lanino, E.
    Ifversen, M. R. S.
    Schulz, A.
    Gennery, A.
    Burkhardt, B.
    Serra, I. B.
    Diaz-de-Heredia, C.
    Lankester, A.
    Gruhn, B.
    Matthes-Martin, S.
    Kuehl, J-S
    Varotto, S.
    Paillard, C.
    Guilmatre, A.
    Sastre, A.
    Abecasis, M.
    Garwer, B.
    Sedlacek, P.
    Boelens, J. J.
    Bader, P.
    BONE MARROW TRANSPLANTATION, 2017, 52 : S106 - S107
  • [36] Busulfan/Fludarabine- or Treosulfan/Fludarabine-Based Conditioning Regimen in Patients with Wiskott-Aldrich Syndrome Given Allogeneic Hematopoietic Cell Transplantation - an EBMT Inborn Errors Working Party and Scetide Retrospective Analysis
    Albert, Michael H.
    Slatter, Mary
    Gennery, Andrew
    Guengoer, Tayfun
    Blok, Henric-Jan
    Wang, Junfeng
    Courteille, Virginie
    Bernardo, Maria Ester
    Bodova, Ivana
    Bruno, Benedicte
    Bykova, Tatjana A.
    Chiesa, Robert
    Fischer, Alain
    Formankova, Renata
    Kalwak, Krzysztof
    Klein, Christoph
    Kozlovskaya, Svetlana
    Kupesiz, O. Alphan
    Locatelli, Franco
    Mahlaoui, Nizar
    Moshous, Despina
    Neven, Benedicte
    Porta, Fulvio
    Schulz, Ansgar
    Sykora, Karl-Walter
    Unal, Ekrem
    Winiarski, Jacek H.
    Zecca, Marco
    Veys, Paul
    Lankester, Arjan
    BLOOD, 2018, 132
  • [37] General information for patients and carers considering haematopoietic stem cell transplantation (HSCT) for severe autoimmune diseases (ADs): A position statement from the EBMT Autoimmune Diseases Working Party (ADWP), the EBMT Nurses Group, the EBMT Patient, Family and Donor Committee and the Joint Accreditation Committee of ISCT and EBMT (JACIE)
    Helen Jessop
    Dominique Farge
    Riccardo Saccardi
    Tobias Alexander
    Montserrat Rovira
    Basil Sharrack
    Raffaella Greco
    Nico Wulffraat
    John Moore
    Majid Kazmi
    Manuela Badoglio
    Gillian Adams
    Bregje Verhoeven
    John Murray
    John A. Snowden
    Bone Marrow Transplantation, 2019, 54 : 933 - 942
  • [38] General information for patients and carers considering haematopoietic stem cell transplantation (HSCT) for severe autoimmune diseases (ADs): A position statement from the EBMT Autoimmune Diseases Working Party (ADWP), the EBMT Nurses Group, the EBMT Patient, Family and Donor Committee and the Joint Accreditation Committee of ISCT and EBMT (JACIE)
    Jessop, Helen
    Farge, Dominique
    Saccardi, Riccardo
    Alexander, Tobias
    Rovira, Montserrat
    Sharrack, Basil
    Greco, Raffaella
    Wulffraat, Nico
    Moore, John
    Kazmi, Majid
    Badoglio, Manuela
    Adams, Gillian
    Verhoeven, Bregje
    Murray, John
    Snowden, John A.
    BONE MARROW TRANSPLANTATION, 2019, 54 (07) : 933 - 942
  • [39] Busulfan-fludarabine- or treosulfan-fludarabine-based conditioning before allogeneic HSCT from matched sibling donors in paediatric patients with sickle cell disease: A study on behalf of the EBMT Paediatric Diseases and Inborn Errors Working Parties
    Cseh, Annamaria
    Galimard, Jacques-Emmanuel
    de la Fuente, Josu
    Isgro, Antonella
    Zecca, Marco
    Garwer, Birgit
    Biffi, Alexandra
    Aljurf, Mahmoud
    Sundin, Mikael
    Belendez, Cristina
    Locatelli, Franco
    Balduzzi, Adriana
    Lawson, Sarah
    Sengeloev, Henrik
    Ifversen, Marianne
    Saccardi, Riccardo
    Wynn, Robert
    Lankester, Arjan C.
    Corbacioglu, Selim
    Peters, Christina
    BRITISH JOURNAL OF HAEMATOLOGY, 2024, 204 (01) : e1 - e5
  • [40] Thiotepa-Based Conditioning for Allogeneic Stem Cell Transplantation (allo-HSCT) in Acute Lymphoblastic Leukaemia (ALL) - a Survey from the Acute Leukemia Working Party (ALWP) of the European Society for Blood and Marrow Transplantation (EBMT)
    Eder, Sandra
    Beohou, Eric
    Labopin, Myriam
    Sanz, Jaime
    Finke, Juergen
    Arcese, William
    Or, Reuven
    Bonifazi, Francesca
    Cortelezzi, Agostino
    Majolino, Ignazio
    Bacigalupo, Andrea
    Spyridonidis, Alexandros
    Alessandrino, Emilio Paolo
    Giebel, Sebastian
    Mohty, Mohamad
    Nagler, Arnon
    BLOOD, 2015, 126 (23)
12345