A two-year prospective study of the health-related quality of life of children with chronic illness – the parents’ perspective

被引：0
作者：
M. G. Sawyer
K. E. Reynolds
J. J. Couper
D. J. French
D. Kennedy
J. Martin
R. Staugas
P. A. Baghurst
机构：
[1] Women’s and Children’s Hospital,Research and Evaluation Unit, and Department of Paediatrics
[2] University of Adelaide,Department of Paediatrics
[3] University of Adelaide,Department of Psychology
[4] University of Western Australia,Department of Pulmonary Medicine
[5] Women’s and Children’s Hospital,Public Health Research Unit and Department of Paediatrics,
[6] Women’s and Children’s Hospital,undefined
[7] University of Adelaide,undefined
来源：
Quality of Life Research | 2005年 / 14卷
关键词：
Adolescents; Children; Chronic illness; Health-related quality of life; Parents; Prospective;
D O I：
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中图分类号：
学科分类号：
摘要：
The aim of this study was to assess prospectively changes in the health-related quality of life (HRQL) of children and adolescents with diabetes, asthma or cystic fibrosis (CF). One hundred and twenty-two parents of children aged 10–16 years with asthma, diabetes, or CF were recruited from specialist paediatric clinics. Parents described their children’s HRQL using the Child Health Questionnaire (PF98) at baseline, 6, 12, 18 and 24 months post-baseline. They reported that the general health of children with CF was significantly worse than that of children with asthma and diabetes at baseline. In other domains there were few differences between the HRQL of children in the three groups. In several domains, the HRQL of children with asthma or diabetes improved over the 2years of the study. This improvement was less evident for children with CF.
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页码：395 / 405
页数：10
相关论文
共 35 条
  • [1] Juniper EF(1997)Minimum skills required by children to complete health-related quality of life instruments for asthma: comparison of measurement properties. Eur Respir J 10 2285-2294
  • [2] Guyatt GH(2001)The PedsQL 4.0: Reliability and validity of Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in healthy and patient populations. Med Care 39 800-812
  • [3] Feeney D(1998)Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry 39 29-46
  • [4] Griffith LE(1989)What diagnosis does not tell: The case for a noncategorical approach to chronic illness in childhood. Soc Sci Med 29 769-778
  • [5] Ferrie PJ(2001)Can parents rate their child’s health-related quality of life? Results of a systematic review. Qual Life Res 10 347-357
  • [6] Varni JW(1997)Childhood cancer: A two-year prospective study of the psychological adjustment of children and parents. J Am Acad Child Adolesc Psychiatry 36 1736-1441
  • [7] Seid M(1994)Measurement of functional severity of asthma in children. Am J Respir Crit Care Med 149 1434-171
  • [8] Kurtin PS(2004)Differences between adolescents’ and parents’ reports of health-related quality of life in cystic fibrosis. Pediatr Pulm 37 165-226
  • [9] Wallander JL(1993)Interpretation of quality of life changes. Qual Life Res 2 221-812
  • [10] Varni JW(2001)The PedsQL Med Care 39 800-undefined
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