Italian translation, cultural adaptation, and pilot testing of a questionnaire to assess family burden in inherited ichthyoses

被引：0

作者：

May El Hachem

Damiano Abeni

Andrea Diociaiuti

Roberta Rotunno

Francesco Gesualdo

Giovanna Zambruno

Christine Bodermer

机构：

[1] Bambino Gesù Children’s Hospital,Dermatology Unit

[2] IRCCS,Department of Dermatology

[3] Clinical Epidemiology Unit,undefined

[4] IDI-IRCCS,undefined

[5] Multifactorial and Complex Disease Research Area,undefined

[6] Bambino Gesù Children’s Hospital IRCCS,undefined

[7] Necker-Enfants Malades Hospital,undefined

[8] Centre de Référence National pour les Maladies Génétiques à Expression Cutanée (MAGEC),undefined

[9] APHP,undefined

来源：

Italian Journal of Pediatrics | / 45卷

关键词：

Inherited ichthyosis; Autosomal recessive congenital ichthyosis (ARCI); Quality of life; Family burden; Dermatology;

D O I：

暂无

中图分类号：

学科分类号：

摘要：

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