Italian translation, cultural adaptation, and pilot testing of a questionnaire to assess family burden in inherited ichthyoses

被引：0
作者：
May El Hachem
Damiano Abeni
Andrea Diociaiuti
Roberta Rotunno
Francesco Gesualdo
Giovanna Zambruno
Christine Bodermer
机构：
[1] Bambino Gesù Children’s Hospital,Dermatology Unit
[2] IRCCS,Department of Dermatology
[3] Clinical Epidemiology Unit,undefined
[4] IDI-IRCCS,undefined
[5] Multifactorial and Complex Disease Research Area,undefined
[6] Bambino Gesù Children’s Hospital IRCCS,undefined
[7] Necker-Enfants Malades Hospital,undefined
[8] Centre de Référence National pour les Maladies Génétiques à Expression Cutanée (MAGEC),undefined
[9] APHP,undefined
来源：
Italian Journal of Pediatrics | / 45卷
关键词：
Inherited ichthyosis; Autosomal recessive congenital ichthyosis (ARCI); Quality of life; Family burden; Dermatology;
D O I：
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