Italian translation, cultural adaptation, and pilot testing of a questionnaire to assess family burden in inherited ichthyoses

被引：0
|
作者：
May El Hachem
Damiano Abeni
Andrea Diociaiuti
Roberta Rotunno
Francesco Gesualdo
Giovanna Zambruno
Christine Bodermer
机构：
[1] Bambino Gesù Children’s Hospital,Dermatology Unit
[2] IRCCS,Department of Dermatology
[3] Clinical Epidemiology Unit,undefined
[4] IDI-IRCCS,undefined
[5] Multifactorial and Complex Disease Research Area,undefined
[6] Bambino Gesù Children’s Hospital IRCCS,undefined
[7] Necker-Enfants Malades Hospital,undefined
[8] Centre de Référence National pour les Maladies Génétiques à Expression Cutanée (MAGEC),undefined
[9] APHP,undefined
来源：
Italian Journal of Pediatrics | / 45卷
关键词：
Inherited ichthyosis; Autosomal recessive congenital ichthyosis (ARCI); Quality of life; Family burden; Dermatology;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
相关论文
共 50 条
  • [1] Italian translation, cultural adaptation, and pilot testing of a questionnaire to assess family burden in inherited ichthyoses
    El Hachem, May
    Abeni, Damiano
    Diociaiuti, Andrea
    Rotunno, Roberta
    Gesualdo, Francesco
    Zambruno, Giovanna
    Bodermer, Christine
    ITALIAN JOURNAL OF PEDIATRICS, 2019, 45 (1)
  • [2] "Quality of Life in Epidermolysis Bullosa" and "Epidermolysis Bullosa Burden of Disease": Italian translation, cultural adaptation, and pilot testing of two disease-specific questionnaires
    El Hachem, May
    Diociaiuti, Andrea
    Zambruno, Giovanna
    Samela, Tonia
    Ferretti, Francesca
    Carnevale, Claudia
    Linertova, Renata
    Bodemer, Christine
    Murrell, Dedee F.
    Abeni, Damiano
    ITALIAN JOURNAL OF PEDIATRICS, 2024, 50 (01)
  • [3] Italian Version of the YQOL-DHH Questionnaire: Translation and Cross-cultural Adaptation
    ragnaniello, Manuela
    Celletti, Claudia
    Resca, Alessandra
    Galeoto, Giovanni
    Camerota, Filippo
    OTO OPEN, 2021, 5 (04)
  • [4] Translation and cultural adaptation of the Computer Vision Syndrome Questionnaire (CVS-Q©) into Italian
    del Mar Segui-Crespo, Maria
    Canto Sancho, Natalia
    Ronda, Elena
    Colombo, Renzo
    Porru, Stefano
    Carta, Angela
    MEDICINA DEL LAVORO, 2019, 110 (01): : 37 - 45
  • [5] Family burden in inherited ichthyosis: creation of a specific questionnaire
    Hélène Dufresne
    Smail Hadj-Rabia
    Cécile Méni
    Vincent Sibaud
    Christine Bodemer
    Charles Taïeb
    Orphanet Journal of Rare Diseases, 8
  • [6] Family burden in inherited ichthyosis: creation of a specific questionnaire
    Dufresne, Helene
    Hadj-Rabia, Smail
    Meni, Cecile
    Sibaud, Vincent
    Bodemer, Christine
    Taieb, Charles
    ORPHANET JOURNAL OF RARE DISEASES, 2013, 8
  • [7] Translation and cultural adaptation of SF Qualiveen questionnaire in Greek
    Konstantinidis, Charalampos
    Tzitzika, Moira
    Daoultzis, Konstantinos C.
    Samarinas, Michalis
    Giannitsas, Konstantinos
    Athanasopoulos, Anastasios
    EUROPEAN JOURNAL OF PHYSICAL AND REHABILITATION MEDICINE, 2021, 57 (04) : 639 - 644
  • [8] Romanian Translation and Cultural Adaptation of the Seizure Severity Questionnaire
    Cioriceanu, Ionut-Horia
    Constantin, Dan-Alexandru
    Zamfirescu, Bianca
    Podasca, Petru Cezar
    Marceanu, Luigi Geo
    Rogozea, Liliana
    NEUROLOGY INTERNATIONAL, 2024, 16 (05): : 1005 - 1013
  • [9] Spanish Translation and Cultural Adaptation of the Fibromyalgia Knowledge Questionnaire
    Mendoza-Munoz, Maria
    Rodal, Miguel
    Angel Garcia-Gordillo, Miguel
    Acevedo-Duque, Angel
    Garcia-Matador, Judith
    Ignacio Calzada-Rodriguez, Jose
    Morenas-Martin, Jesus
    INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2021, 18 (14)
  • [10] Translation and cultural adaptation of a Patient Perception of Arrhythmia Questionnaire in Poland
    Farkowski, Michal Miroslaw
    Pytkowski, Mariusz
    Golicki, Dominik
    Szumowski, Lukasz
    Wood, Kathryn A.
    Szwed, Hanna
    KARDIOLOGIA POLSKA, 2014, 72 (03) : 246 - 253
12345