A qualitative study on experiences of stigma among postoperative oral cancer patients

被引:3
作者
Zhu, Jie [1 ,2 ]
Tan, Chu-Xia [2 ,3 ]
Guo, Jia-Yi [1 ,2 ]
Yang, Rong-Hong [1 ,4 ]
Ye, Man [1 ,2 ]
机构
[1] Cent South Univ, Clin Nursing Teaching & Res Sect, Xiangya Hosp 2, 139 Renmin Middle Rd, Changsha 410011, Hunan, Peoples R China
[2] Cent South Univ, Xiangya Nursing Sch, Changsha 410013, Hunan, Peoples R China
[3] Cent South Univ, Nursing Dept, Xiangya Hosp 3, Changsha 410013, Hunan, Peoples R China
[4] Cent South Univ, Intens Care Unit Stomatol, Xiangya Hosp 2, Changsha 410011, Hunan, Peoples R China
关键词
Mouth neoplasms; Stigma; Psychology; Qualitative study; HEALTH; HEAD; MORTALITY; SURVIVORS; IMPACT; CHINA; LUNG;
D O I
10.1007/s00520-024-08491-6
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
AimThis study aimed to explore the characteristics of stigma in postoperative oral cancer patients to provide a reference for the formulation of targeted intervention measures.MethodsA qualitative study was conducted on 25 postoperative oral cancer patients in a tertiary A hospital in Hunan, China, from March to July 2021. Semi-structured face-to-face interviews focused on experiences of stigma were performed. The interview data was analyzed using the NVivo V.12 software based on the reflexive intuitive thematic analysis method. The paper complies with the COREQ.ResultsThe stigma experience of postoperative oral cancer patients can be divided into 3 themes: (1) triggers (impaired appearance and oral function and psycho-social pressure); (2) forms (overall isolation, unpleasant feeling of inferiority, and unpleasant social discrimination); (3) coping strategies (positive psychological adjustment, seeking social support and coming out of the unpleasant shadows).ConclusionPostoperative oral cancer patients clearly articulated that stigma was present in their lives and they experienced multiple forms of stigma. Further work is needed to increase education and awareness about oral cancer to guide them to take positive coping and reduce stigma.
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页数:11
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