Assessing the quality and value of metabolic chart data for capturing core outcomes for pediatric medium-chain acyl-CoA dehydrogenase (MCAD) deficiency

被引：0

作者：

Ryan Iverson

Monica Taljaard

Michael T. Geraghty

Michael Pugliese

Kylie Tingley

Doug Coyle

Jonathan B. Kronick

Kumanan Wilson

Valerie Austin

Catherine Brunel-Guitton

Daniela Buhas

Nancy J. Butcher

Alicia K. J. Chan

Sarah Dyack

Sharan Goobie

Cheryl R. Greenberg

Shailly Jain-Ghai

Michal Inbar-Feigenberg

Natalya Karp

Mariya Kozenko

Erica Langley

Matthew Lines

Julian Little

Jennifer MacKenzie

Bruno Maranda

Saadet Mercimek-Andrews

Aizeddin Mhanni

John J. Mitchell

Laura Nagy

Martin Offringa

Amy Pender

Murray Potter

Chitra Prasad

Suzanne Ratko

Ramona Salvarinova

Andreas Schulze

Komudi Siriwardena

Neal Sondheimer

Rebecca Sparkes

Sylvia Stockler-Ipsiroglu

Kendra Tapscott

Yannis Trakadis

Lesley Turner

Clara Van Karnebeek

Anthony Vandersteen

Jagdeep S. Walia

Brenda J. Wilson

Andrea C. Yu

Beth K. Potter

Pranesh Chakraborty

机构：

[1] University of Ottawa,School of Epidemiology and Public Health

[2] Ottawa Hospital Research Institute,Clinical Epidemiology Program

[3] Children’s Hospital of Eastern Ontario and University of Ottawa,Department of Pediatrics

[4] The Hospital for Sick Children/University of Toronto,Department of Medicine

[5] Bruyère Research Institute,Department of Medical Genetics

[6] University of Ottawa,Emma Center for Personalized Medicine

[7] Le Centre Hospitalier Universitaire Ste-Justine,undefined

[8] McGill University Health Centre,undefined

[9] The Hospital for Sick Children Research Institute/University of Toronto,undefined

[10] University of Alberta/Stollery Children’s Hospital,undefined

[11] IWK Health Centre/Dalhousie University,undefined

[12] Health Sciences Centre Winnipeg/University of Manitoba,undefined

[13] London Health Sciences Centre/Western University,undefined

[14] McMaster Children’s Hospital,undefined

[15] Hamilton Health Sciences Centre/McMaster University,undefined

[16] Janeway Children’s Hospital/Memorial University,undefined

[17] CIUSSSE-CHUS,undefined

[18] Université de Sherbrooke,undefined

[19] Sherbrooke,undefined

[20] Canada,undefined

[21] BC Children’s Hospital/University of British Columbia,undefined

[22] Alberta Children’s Hospital/University of Calgary,undefined

[23] Amsterdam University Medical Centers,undefined

[24] Kingston Health Sciences/Queen’s University,undefined

[25] Newborn Screening Ontario,undefined

来源：

BMC Pediatrics | / 24卷

关键词：

MCAD deficiency; Core outcome set; Data quality;

D O I：

暂无

中图分类号：

学科分类号：

摘要：

引用

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