Resilience, childhood disability and the Internet – case reportResilienz, kindliche Mehrfachbehinderung und Internet – Fallbericht

被引:0
|
作者
Marianne B. Sutton
Stefanie Windischbauer
Evelyne Magali St. John Sutton
Dietmar Weixler
机构
[1] Pediatric Hospitalist,Department of Radiotherapy and Radio
[2] Paracelsus Private Medical University,Oncology
[3] Columbia University,undefined
[4] Palliative Support Team,undefined
[5] Landesklinikum Waldviertel Horn,undefined
关键词
Palliative care; Internet; Childhood disability; Family; Information; Mehrfachbehinderung; Familie; Resilienz; Kind; Epilepsie;
D O I
10.1007/s10354-010-0777-2
中图分类号
学科分类号
摘要
We describe a family with a severely disabled child who demonstrates many of the characteristics of resilient families: strong relationships, good communication, and profound love of the disabled child. But this family has a characteristic that is infrequently described in the literature yet common in practice: the mother initiated many medical decisions based on knowledge gathered on the Internet. Parental education on the Internet can now allow families to gain a sense of mastery over their child's disease.
引用
收藏
页码:325 / 327
页数:2
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