Palliative care for patients with motor neurone disease and their bereaved carers: a qualitative study

被引:0
|
作者
Clare Mc Veigh
Colette Donaghy
Briege Mc Laughlin
Alison Dick
Kiran Kaur
John Mc Conville
Max Watson
机构
[1] Queen’s University Belfast,School of Nursing and Midwifery
[2] Belfast Health and Social Care Trust,School of Medicine, Dentistry and Biomedical Sciences
[3] Western health and Social Care Trust,undefined
[4] Queen’s University Belfast,undefined
[5] Northern Ireland Hospice,undefined
[6] Ulster University,undefined
来源
BMC Palliative Care | / 18卷
关键词
Amyotrophic lateral sclerosis; Motor neurone disease; Palliative care; End of life; Qualitative; Bereaved carers;
D O I
暂无
中图分类号
学科分类号
摘要
引用
收藏
相关论文
共 50 条
  • [31] Family caregivers' accounts of caring for a family member with motor neurone disease in Norway: a qualitative study
    Lerum, Sverre Vigeland
    Solbraekke, Kari Nyheim
    Frich, Jan C.
    BMC PALLIATIVE CARE, 2016, 15
  • [32] Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease
    Brenda Bentley
    Moira O’Connor
    Lauren J Breen
    Robert Kane
    BMC Palliative Care, 13
  • [33] Assisting patients with motor neurone disease to make decisions about their care
    Gale, Caroline
    International Journal of Palliative Nursing, 2015, 21 (05) : 251 - 255
  • [34] "Palliative care is so much more than that": a qualitative study exploring experiences of hospice staff and bereaved carers during the COVID-19 pandemic
    Bailey, Cara
    Guo, Ping
    Macartney, John
    Finucane, Anne
    Meade, Richard
    Swan, Susan
    Wagstaff, Ellie
    FRONTIERS IN PUBLIC HEALTH, 2023, 11
  • [35] Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease
    Bentley, Brenda
    O'Connor, Moira
    Breen, Lauren J.
    Kane, Robert
    BMC PALLIATIVE CARE, 2014, 13
  • [36] Understanding psycho-social processes underpinning engagement with services in motor neurone disease: A qualitative study
    Foley, Geraldine
    Timonen, Virpi
    Hardiman, Orla
    PALLIATIVE MEDICINE, 2014, 28 (04) : 318 - 325
  • [37] The Palliative Care Needs of Patients with Multiple Sclerosis, Parkinson's Related Diseases, and Motor Neurone Disease: A Secondary Analysis of the OPTCARE Neuro Trial Data
    Doherty, Mairead
    Chukwusa, Emeka
    McQuillan, Regina
    Cranfield, Faith
    Gao, Wei
    JOURNAL OF PALLIATIVE MEDICINE, 2024, 27 (05) : 622 - 629
  • [38] Experiences of living with motor neurone disease: a review of qualitative research
    Sakellariou, Dikaios
    Boniface, Gail
    Brown, Paul
    DISABILITY AND REHABILITATION, 2013, 35 (21) : 1765 - 1773
  • [39] What are the experiences and needs of patients and carers receiving community palliative care in Malaysia? A qualitative study
    McCarthy, Sylvia Ann
    Jenn, Ng Chirk
    Leng, Caroline Chin Kwong
    Hamzah, Ednin
    PROGRESS IN PALLIATIVE CARE, 2016, 24 (02) : 73 - 83
  • [40] Grief, depression, and anxiety in bereaved caregivers of people with motor neurone disease: a population-based national study
    Aoun, Samar M.
    Kissane, David W.
    Cafarella, Paul A.
    Rumbold, Bruce
    Hogden, Anne
    Jiang, Leanne
    Bear, Natasha
    AMYOTROPHIC LATERAL SCLEROSIS AND FRONTOTEMPORAL DEGENERATION, 2020, 21 (7-8) : 593 - 605