Genetic Testing Experiences Among Parents of Children with Autism Spectrum Disorder in the United States

被引：0
作者：
Shixi Zhao
Wei-Ju Chen
Shweta U. Dhar
Tanya N. Eble
Oi-Man Kwok
Lei-Shih Chen
机构：
[1] University of New Mexico,Department of Health, Exercise & Sports Sciences
[2] The University of Texas of the Permian Basin,Department of Psychology
[3] Baylor College of Medicine,Department of Molecular and Human Genetics
[4] Texas A&M University,Department of Educational Psychology
[5] Texas A&M University,Department of Health and Kinesiology
来源：
Journal of Autism and Developmental Disorders | 2019年 / 49卷
关键词：
Autism spectrum disorder; Genetic testing; Parents; Utilization; Experience;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
This study examined the experiences of Autism Spectrum Disorder (ASD) genetic testing among parents of children with ASD. A nationwide sample of 552 parents of children with ASD completed an online survey. Nearly one-quarter (22.5%) of the parents reported that their affected children had undergone ASD genetic testing. The testing utilization was associated with awareness of ASD genetic testing and whether information was received from healthcare providers. Among parents whose children with ASD were tested, 37.6% had negative experiences, which mainly due to lack of perceived testing benefits to their affected children and unpleasant testing experiences with healthcare providers. To provide better healthcare services, it is critical to ensure parents understand the purposes, benefits, and results of ASD genetic testing.
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页码：4821 / 4833
页数：12
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