Parent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample

被引:0
作者
Katharine E. Zuckerman
Olivia J. Lindly
Nuri M. Reyes
Alison E. Chavez
Maritza Cobian
Kristy Macias
Ann M. Reynolds
Kathryn A. Smith
机构
[1] Oregon Health & Science University,Division of General Pediatrics, Doernbecher Children’s Hospital
[2] Oregon Health & Science University – Portland State University School of Public Health,Division of General Academic Pediatrics
[3] Massachusetts General Hospital,Department of Psychiatry and Pediatrics
[4] University of Colorado School of Medicine,Department of Psychology
[5] University of Massachusetts Boston,Department of Clinical Psychology
[6] Pacific University,Department of Pediatrics, Los Angeles Children’s Hospital
[7] University of Southern California,Department of Pediatrics
[8] University of Southern California University Center for Excellence in Developmental Disabilities,undefined
[9] University of Colorado School of Medicine,undefined
[10] Harvard Medical School,undefined
来源
Journal of Autism and Developmental Disorders | 2018年 / 48卷
关键词
Autism spectrum disorder; Stigma; Mental health services; Developmental disability; Healthcare disparities; Health care surveys;
D O I
暂无
中图分类号
学科分类号
摘要
In this study we developed a brief, English/Spanish bilingual parent-reported scale of perceived community autism spectrum disorder (ASD) stigma and tested it in a multi-site sample of Latino and non-Latino white parents of children with ASD. Confirmatory factor analysis of the scale supported a single factor solution with 8 items showing good internal consistency. Regression modeling suggested that stigma score was associated with unmet ASD care needs but not therapy hours or therapy types. Child public insurance, parent nativity, number of children with ASD in the household, parent-reported ASD severity, and family structure, were associated with higher stigma score. The scale and the scale’s associations with service use may be useful to those attempting to measure or reduce ASD stigma.
引用
收藏
页码:3199 / 3209
页数:10
相关论文
共 133 条
  • [1] Abdullah T(2011)Mental illness stigma and ethnocultural beliefs, values, and norms: An integrative review Clinical Psychology Review 31 934-948
  • [2] Brown TL(2012)Self stigma in people with intellectual disabilities and courtesy stigma in family carers: A systematic review Research in Developmental Disabilities 33 2122-2140
  • [3] Ali A(2013)Caregiving of children with intellectual disabilities in China–an examination of affiliate stigma and the cultural thesis Journal of Intellectual Disability Research 57 1117-1129
  • [4] Hassiotis A(2016)Prevalence and characteristics of autism spectrum disorder among children aged 8 years: Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2012 Morbidity and Mortality Weekly Report Surveillance Summaries 65 1-23
  • [5] Strydom A(2000)Mental health stigma as social attribution: Implications for research methods and attitude change Clinical Psychology: Science and Practice 7 48-67
  • [6] King M(2004)How stigma interferes with mental health care American Psychologist 59 614-973
  • [7] Chiu MY(2012)Challenging the public stigma of mental illness: A meta-analysis of outcome studies Psychiatric Services 63 963-458
  • [8] Yang X(2007)The stigma of psychiatric disorders and the gender, ethnicity, and education of the perceiver Community Mental Health Journal 43 439-1567
  • [9] Wong F(2013)Awareness and knowledge of autism and autism interventions: A general population survey Research in Autism Spectrum Disorders 7 1558-816
  • [10] Li J(2010)Stigmatizing experiences of parents of children with a new diagnosis of ADHD Psychiatric Services 61 811-399