Caregiver burden in pediatric dialysis

被引：0
作者：
Aaron Wightman
机构：
[1] University of Washington School of Medicine,Divisions of Nephrology, Bioethics and Palliative Care, Department of Pediatrics
[2] Seattle Children’s Hospital,Division of Nephrology
[3] Seattle Children’s Hospital and Research Institute,Treuman Katz Center for Pediatric Bioethics
来源：
Pediatric Nephrology | 2020年 / 35卷
关键词：
Dialysis; Decision-making; Caregiver burden; Ethics;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
In spite of improvements in expected survival, neurodevelopmental outcome, and quality of life, decision-making in neonatal dialysis remains controversial in high-resource countries. In part, this may be based upon the significant burdens experienced by the child, and also those experienced by the parents as caregivers. Emerging research offers a clearer description of the burdens experienced by dialysis caregivers worldwide. Caregiver burden represents an important area for nephrologists to advocate for patients and their families; however, nephrologists must also recognize the realities caregivers currently experience. Incorporation of caregiver burden into medical decision-making for children with end-stage kidney disease is necessary, but raises several ethical concerns.
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页码：1575 / 1583
页数：8
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