Caregiver burden in pediatric dialysis

被引：0
作者：
Aaron Wightman
机构：
[1] University of Washington School of Medicine,Divisions of Nephrology, Bioethics and Palliative Care, Department of Pediatrics
[2] Seattle Children’s Hospital,Division of Nephrology
[3] Seattle Children’s Hospital and Research Institute,Treuman Katz Center for Pediatric Bioethics
来源：
Pediatric Nephrology | 2020年 / 35卷
关键词：
Dialysis; Decision-making; Caregiver burden; Ethics;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
In spite of improvements in expected survival, neurodevelopmental outcome, and quality of life, decision-making in neonatal dialysis remains controversial in high-resource countries. In part, this may be based upon the significant burdens experienced by the child, and also those experienced by the parents as caregivers. Emerging research offers a clearer description of the burdens experienced by dialysis caregivers worldwide. Caregiver burden represents an important area for nephrologists to advocate for patients and their families; however, nephrologists must also recognize the realities caregivers currently experience. Incorporation of caregiver burden into medical decision-making for children with end-stage kidney disease is necessary, but raises several ethical concerns.
引用
收藏
页码：1575 / 1583
页数：8
相关论文
共 228 条
  • [11] Jager KJ(2000)Caregiver burden: a concept analysis J Pediatr Nurs 15 398-407
  • [12] Carey WA(2000)Long-term outcome of peritoneal dialysis in infants J Pediatr 136 24-29
  • [13] Martz KL(2000)Towards guidelines for dialysis in children with end-stage renal disease Pediatr Nephrol 15 157-162
  • [14] Warady BA(2013)Clinical practice recommendations for the care of infants with stage 5 chronic kidney disease (CKD5) Pediatr Nephrol 28 1739-1748
  • [15] Rees L(2000)Neonatal end-of-life decision making: physicians’ attitudes and relationship with self-reported practices in 10 European countries Jama 284 2451-2459
  • [16] Levy CS(2003)Attitudes and preferences of intensivists regarding the role of family interests in medical decision making for incompetent patients Crit Care Med 31 1895-1900
  • [17] Mudi A(2011)Attitudes of caregivers to management of end-stage renal disease in infants Perit Dial Int: J Int Soc Perit Dial 31 459-465
  • [18] Venter B(1998)Attitudes of pediatric nephrologists to management of end-stage renal disease in infants J Pediatr 133 154-156
  • [19] Geel J(2018)Neonatal renal replacement therapy: an ethical reflection for a crucial decision Arch Pediatr 25 371-377
  • [20] Ojo A(2004)Decisions concerning potentially life-sustaining treatments in paediatric nephrology: a multicentre study in French-speaking countries Nephrol, Dial, Transpl : Off Publication of the European Dialysis and Transplant Association - European Renal Association 19 1252-1257
12345678910