Engaging transgender women in HIV research in South Africa

被引:0
作者
L. Leigh Ann van der Merwe
Allanise Cloete
Helen Savva
Donald Skinner
Gita November
Zsa-Zsa Fisher
机构
[1] Social,School of Public Health
[2] Health,undefined
[3] and Empowerment (S.H.E) Feminist Collective of Transgender Women of Africa,undefined
[4] Public Health,undefined
[5] Societies and Belonging (PHSB) the Human Sciences Research Council (HSRC),undefined
[6] Prevention Branch,undefined
[7] U.S. Centers for Disease Control and Prevention (CDC),undefined
[8] Stellenbosch University,undefined
[9] Trans TEC SA,undefined
[10] Trans Power Care Centre,undefined
来源
BMC Public Health | / 23卷
关键词
Transgender women; South Africa; Community-based participatory research; HIV research; Community engagement; Marginalized communities;
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学科分类号
摘要
The Botshelo Ba Trans study was the first HIV bio-behavioral survey conducted with transgender women in South Africa. Engaging research with marginalized communities requires clear points of entry, reference points for understanding the internal culture, and establishing trust and understanding. The community-based participatory research approach guided the development and implementation of this study. We conducted a rapid qualitative and pre-surveillance formative assessment between August 2017 to January 2018 and a bio-behavioral survey between July 2018 and March 2019. At the start, a Steering Committee, comprising primarily of transgender women, was established and subsequently provided substantial input into the mixed methods study conducted in Buffalo City, Cape Town, and Johannesburg. Key to the study's success was building trust and establishing ownership of the survey by transgender women recognized as expert knowledge holders. Thus, a community-based participatory research-informed approach enhanced the validity of the data and ensured that we addressed relevant issues.
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