Lessons from the on-site quality audit of data transmitted to the French cystic fibrosis registry

被引：0

作者：

Nadine Pellen

Laëtitia Guéganton

Dominique Pougheon Bertrand

Gilles Rault

机构：

[1] Fondation ildys,LEPS EA3412

[2] CF Center,undefined

[3] Fondation Ildys,undefined

[4] Sorbonne Paris Cité University,undefined

来源：

Orphanet Journal of Rare Diseases | / 13卷

关键词：

Cystic fibrosis; Registry; Quality audit; Measurement recommendations;

D O I：

暂无

中图分类号：

学科分类号：

摘要：

引用

共 4 条

[1]

Rault G(1998)Vers un rapprochement des registres et observatoires de la mucoviscidose (towards a reconciliation of CF registries and observatories) Référence Mucoviscidose 3 9-14

[2]

Burgel PR(2015)Future trends in cystic fibrosis demography in 34 European countries Eur Respir J 46 133-141

[3]

Miller MR(2005)ATS/ERS task force: standardisation of lung function testing Eur Respir J 26 319-338

[4]

Quanjer PH(1992)Lung volumes and forced ventilatory flows. Report working party standardization of lung function tests, European Community for steel and coal. Official statement of the European Respiratory Society Eur Respir J Suppl 15-16 5-40

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