Multicentre cross-sectional clinical evaluation study about quality of life in adults with disorders/differences of sex development (DSD) compared to country specific reference populations (dsd-LIFE)

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作者
Marion Rapp
Esther Mueller-Godeffroy
Peter Lee
Robert Roehle
Baudewijntje P. C. Kreukels
Birgit Köhler
Anna Nordenström
Claire Bouvattier
Ute Thyen
机构
[1] Universitat zu Lubeck,Klinik fur Kinder
[2] Pediatrics, und Jugendmedizin
[3] Penn State College of Medicine,Medische Psychologie en Medisch Maatschappelijk Werk
[4] Charite,Department of Women’s and Children’s Health, Karolinska Institutet
[5] Campus Virchow-Klinikum,Endocrinologie pediatrique, Centre de reference des maladies rares du developpement sexuel, Hopital Bicetre
[6] Koordinierungszentrum fur Klinische Studien (KKS Charite),undefined
[7] VU Medisch Centrum,undefined
[8] Charite,undefined
[9] Campus Virchow-Klinikum,undefined
[10] Klinik fur Padiatrie mit Schwerpunkt Endokrinologie und Diabetologie,undefined
[11] Karolinska University Hospital,undefined
[12] Universite Paris-Sud,undefined
[13] 78 rue du General Leclerc,undefined
关键词
Disorders of sex development; Quality of life; Rare disorders; Health status; General population;
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