Psychometric evaluation of a patient-reported outcomes instrument for congenital thrombotic thrombocytopenic purpura

被引：0
作者：
Abiola Oladapo
Diane Ito
Ana María Rodriguez
Stephanie Philpott
Robert Krupnick
Veleka Allen
Christopher Hibbard
Marie Scully
Bruce Ewenstein
机构：
[1] Takeda Development Center Americas,Department of Haematology
[2] Inc.,undefined
[3] IQVIA,undefined
[4] IQVIA,undefined
[5] IQVIA,undefined
[6] IQVIA,undefined
[7] University College London Hospitals,undefined
来源：
Journal of Patient-Reported Outcomes | / 7卷
关键词：
Congenital thrombotic thrombocytopenic purpura; TTP; Rare diseases; Psychometrics; Patient-reported outcome measures; PRO; Clinical outcome assessment; Quality of life;
D O I：
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