Diagnostic delay in rare diseases: data from the Spanish rare diseases patient registry

被引:0
作者
Juan Benito-Lozano
Blanca López-Villalba
Greta Arias-Merino
Manuel Posada de la Paz
Verónica Alonso-Ferreira
机构
[1] Instituto de Salud Carlos III,Institute of Rare Diseases Research (IIER)
[2] Universidad Nacional de Educación a Distancia (UNED),Preventive Medicine and Public Health
[3] Hospital Clínico Universitario de Valladolid (HCUV),Centre for Biomedical Network Research On Rare Diseases (CIBERER)
[4] Instituto de Salud Carlos III,undefined
来源
Orphanet Journal of Rare Diseases | / 17卷
关键词
Rare diseases; Diagnostic delay; Time to diagnosis; Patient registry; Spain; Public health;
D O I
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