Measures and Outcome Instruments for Pediatric Spinal Cord Injury

被引：0

作者：

Bell A. ^{[1
]}

Guido T. ^{[1
]}

Krisa L. ^{[2
]}

Muhlenhaupt M. ^{[1
]}

Mulcahey M.J. ^{[1
]}

机构：

[1] Jefferson College of Health Professions, Thomas Jefferson University, 901 Walnut Street, 6th Floor, Philadelphia, 19107, PA

[2] Jefferson College of Health Professions, Thomas Jefferson University, 901 Walnut Street, 5th Floor, Philadelphia, 19107, PA

来源：

Current Physical Medicine and Rehabilitation Reports | 2016年 / 4卷 / 3期

关键词：

Computerized adaptive tests; Functional Outcome Measures; International Spinal Cord Injury Basic Data Sets; NINDS Common Data Elements (CDE); Patient-reported outcomes; Spinal Cord Independence Measure (SCIM)-III c;

D O I：

10.1007/s40141-016-0126-5

中图分类号：

学科分类号：

摘要：

Purpose of Review: The purpose of this review is to describe recent advancements in development and validation of measurement tools and outcome instruments for pediatric spinal cord injury, and to identify priorities for research. Recent Findings: There has been advancement in spinal imaging techniques, and in development and validation of performance measures to evaluate neurologic and functional recovery. Computerized adaptive testing of function, activity, and participation has emerged as robust efficient patient-reported outcome instruments. Pediatric SCI common data elements and International SCI Basic Data Sets have been develop and validated, and are available at no cost. Summary: Despite significant progress, there is a marked void in validated outcomes instruments for use with preschool children with SCI. Likewise, development and validation of measures for infants and young children are lacking. Outcome instruments that are capable of administration across the pediatric-adolescence 21-year span are needed. Validation of robust measures that are already in the field needs to be conducted in children with SCI. Measures of executive function, autonomic function, caregiver function, instrumental activities of daily living, and participation are also needed. © 2016, Springer Science + Business Media New York.

引用

页码：200 / 207

页数：7

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