Predictors of clinical trial data sharing: exploratory analysis of a cross-sectional survey

被引:0
作者
Vinay K Rathi
Kelly M Strait
Cary P Gross
Iain Hrynaszkiewicz
Steven Joffe
Harlan M Krumholz
Kristina Dzara
Joseph S Ross
机构
[1] Yale University School of Medicine,Center for Outcomes Research and Evaluation
[2] Yale-New Haven Hospital,Section of General Internal Medicine and the Robert Wood Johnson Foundation Clinical Scholars Program, Department of Medicine
[3] Yale University School of Medicine,Department of Medical Ethics and Health Policy
[4] Nature Publishing Group,Section of Cardiovascular Medicine and the Robert Wood Johnson Foundation Clinical Scholars Program, Department of Medicine
[5] University of Pennsylvania Perelman School of Medicine,Department of Health Policy and Management
[6] Yale University School of Medicine,undefined
[7] Yale University School of Public Health,undefined
来源
Trials | / 15卷
关键词
Data sharing; Clinical trial; Data repository;
D O I
暂无
中图分类号
学科分类号
摘要
引用
收藏
相关论文
共 50 条
  • [41] A data-driven approach to choosing privacy parameters for clinical trial data sharing under differential privacy
    Chen, Henian
    Pang, Jinyong
    Zhao, Yayi
    Giddens, Spencer
    Ficek, Joseph
    Valente, Matthew J.
    Cao, Biwei
    Daley, Ellen
    [J]. JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION, 2024, 31 (05) : 1135 - 1143
  • [42] Knowledge and perception of health-care professionals on clinical trials in India: A pan-Indian cross-sectional survey
    Pillai, Gopal S.
    Sheeba, C. S.
    Barman, Manabjyoti
    Sen, Alok
    Sundaram, Natarajan
    Dickson, Merin
    Joyal, Shamilin
    Choudhury, Manjisa
    Joy, Merlin Mery
    Deepthi, K. G.
    Jangid, Poonam
    Dudwadkar, Shruti
    [J]. INDIAN JOURNAL OF OPHTHALMOLOGY, 2023, 71 (07) : 2866 - +
  • [43] Knowledge and awareness of clinical trials among trial participants in India: A multicentric questionnaire-based cross-sectional study
    Pillai, Gopal S.
    Sheeba, C. S.
    Barman, Manabjyoti
    Sen, Alok
    Sundaram, Natarajan
    Dickson, Merin
    Joyal, Shamilin
    Choudhury, Manjisa
    Joy, Merlin M.
    Deepthi, K. G.
    Jangid, Poonam
    Dani, Samrudhi
    [J]. INDIAN JOURNAL OF OPHTHALMOLOGY, 2024, 72 (02) : 275 - 280
  • [44] Challenges Faced by Cross-sectional Imaging and Histological Endpoints in Clinical Trials
    Villanacci, Vincenzo
    Baert, Filip
    Cornillie, Freddy
    De Hertogh, Gert
    Panes, Julian
    [J]. JOURNAL OF CROHNS & COLITIS, 2017, 11 : S586 - S592
  • [45] Clinical Trial Transparency and Orphan Drug Development: Recent Trends in Data Sharing by the Pharmaceutical Industry
    So, D.
    Joly, Y.
    Knoppers, B. M.
    [J]. PUBLIC HEALTH GENOMICS, 2013, 16 (06) : 322 - 335
  • [46] Distress among caregivers of phase I trial participants: a cross-sectional study
    Elizabeth R. Kessler
    Angela Moss
    S. Gail Eckhardt
    Mark L. Laudenslager
    Kristin Kilbourn
    Iris B. Mauss
    Daniel W. Bowles
    Sharon Hecker
    Diane L. Fairclough
    Jean S. Kutner
    [J]. Supportive Care in Cancer, 2014, 22 : 3331 - 3340
  • [47] Distress among caregivers of phase I trial participants: a cross-sectional study
    Kessler, Elizabeth R.
    Moss, Angela
    Eckhardt, S. Gail
    Laudenslager, Mark L.
    Kilbourn, Kristin
    Mauss, Iris B.
    Bowles, Daniel W.
    Hecker, Sharon
    Fairclough, Diane L.
    Kutner, Jean S.
    [J]. SUPPORTIVE CARE IN CANCER, 2014, 22 (12) : 3331 - 3340
  • [48] Exploratory analysis of biological age measures in a remyelination clinical trial
    Mcmurran, Christopher E.
    de Meo, Ermelinda
    Cunniffe, Nick G.
    Brown, J. William L.
    Prados, Ferran
    Kanber, Baris
    Cole, James H.
    Coles, Alasdair J.
    Hagg, Sara
    Chard, Declan T.
    [J]. BRAIN COMMUNICATIONS, 2025, 7 (01)
  • [49] An assessment of the informative value of data sharing statements in clinical trial registries
    Ohmann, Christian
    Panagiotopoulou, Maria
    Canham, Steve
    Felder, Gerd
    Verde, Pablo Emilio
    [J]. BMC MEDICAL RESEARCH METHODOLOGY, 2024, 24 (01)
  • [50] Implementing a Cloud Based Method for Protected Clinical Trial Data Sharing
    Luthria, Gaurav
    Wang, Qingbo
    [J]. PACIFIC SYMPOSIUM ON BIOCOMPUTING 2020, 2020, : 647 - 658